9-11 Surgery Done and I Got Home Yesterday

13 years 6 months ago #34220 by Herb
Sara:

Thanks for sharing your husband's experience with 'Hospital Psychosis' I know for a fact it had to be very difficult for you --- I saw the fear in my wife's eyes, my son's eyes ---that maybe I would survive the surgery and lose my mind.

I am truly and humbly grateful to my loved one's who had to endure the real nightmare --- and yes, my heart also went 'South' for awhile with 'A-fib' but I really was unaware except for arrival of several more doctor's from 'Heart Hospital' I thought maybe they had wrong room!

God Bless

Age 72 had radical 9/11/10 have conduit everything is fine, grateful to be a cancer survivor. Lost Dad and Brother to Cancer both in their 50's.

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13 years 6 months ago #34215 by sara.anne
Replied by sara.anne on topic 9-11 Surgery Done and I Got Home Yesterday
Herb, glad to hear that things are looking up!

When my husband was operated on for lung cancer, and was on the way to recovery two days later, he went into atrial fib and was moved back into the critical care unit. Early the next morning I had a call from the thoracic surgeon who wanted to talk to me before I went back to the hospital. My husband had gone into "hospital psychosis." If it weren't so sad, it would have been hysterically funny.

I found him in a straight jacket!
I was the only one he "could trust." The nurses, the respiratory therapist, the x-ray tech....were all in a conspiracy to kill him...and probably me. They were listening behind the curtains. AND he was now becoming sure that his surgeon was a part of the plot. They were trying to find out how much money we had, they were going to do away with both of us, and take all our money!!

Believe me, the rules about only 30 minutes with a patient were abandoned...they even brought me meals if I would just stay with him. It was horrible for me when, apparently completely rational, he explained all the horrors to me and begged me to believe him!! When he recovered, he did remember everything and was MORTIFIED.

Long tale...but glad you survived the infection, the surgery, AND the psychosis!!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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13 years 6 months ago #34211 by mmc
Herb,

Glad to hear things are well now.
Sure sounds like hell there for a while.

Welcome back!

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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13 years 6 months ago - 13 years 6 months ago #34210 by Herb
Operation took 6 hours only problem was I was 6' 3" and added size added some time. Conduit is working and may have lucked out today and found Hollester Bag that will hold for more than 30 hours my record to date)--- Hollister is being helpful and my stoma presently 'kind of' a 'inny' but maybe future will pop it out a little --- but35 hours on new convex single bag design is encouraging.

I must say that there were two uniqiue aspects no one predicted that made my surgery --- a trip to Hell and Back. One immediately got C-Dip infection and then second day I went into 'Hospital Pyschosis.' The infection beat me up physically where I could not lift even one finger to pick my nose and the psychosis on third day put me in very unreal frightening places where I want never to return to ever again.

Cancer ended up in Prostate as well as Baldder but all planes, edges and nodes look clear. Pain has just about disappeared and I am 21 days after surgery. Just have to eat moderately and stay away from heavy stuff so intestine can get healed --- found out ingnoring this has immediate painful upleasant results

The Heath Care I got from Surgeon Vincent Ortolano and entire staff at Presbyterian Hospital in Albuquerque, NM was nothing but top notch and this was backed by and equally excellent job by Presbyterian Hospital In Lincoln County Ruidoso with my bro Dr. Chris Robinson and staff who aided me with few more in patience days to beat that bad boy infection.

No fun operation, but never had anyone advertized it as such, but this 71 year old priest is probably going to preach a few more sermons --- do hear some groans out there?

Thanks for your sharing words, knowledge of what lies ahead sincerely help even thouh you are are uniqiue, and uniqie things do pop up. When I get some of 45 pounds back I will attemppt to add to my blog:http://oldpadre.blogspot.com/ Medicine --- an Art and Science --- and I am here --- thanks to my talented fellow human beings.

Age 72 had radical 9/11/10 have conduit everything is fine, grateful to be a cancer survivor. Lost Dad and Brother to Cancer both in their 50's.

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