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Cystoscopy 3 years after neobladder. Is this usual

9 years 3 months ago - 9 years 3 months ago #33050 by Patricia
Actually there were 2 questions addressed..one of a cystoscopy and one regarding an oncologist who didn't believe in Bl2 deficiency.
pat

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9 years 3 months ago #33045 by LeeH
Uhhh, I think the original question got missed. It was about running a cystoscopy 3 yrs after a neo.

Personally, I would have to guess they would do it to check scar tissue formation. Actually sounds like a good idea to check. I had it done much earlier but I was having flow issues at the time. Hasn't been mentioned since and I am 28 months out now.

Lee

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9 years 3 months ago #33042 by Patricia
Yeah thats what they say...initially it was you have a 5 yr supply in your liver.....but it doesn't really seem to be the case with everyone...especially females. We run out faster somehow. My uro started checking within 6 months of cystectomy.
Now mind you my counts were in the 800's before cystectomy.
Pat

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9 years 3 months ago #33041 by mmc
My urologist from UCC believes in it. Since I have to get blood test every year for lipid panel, I just tell my regular doc to do the B12. My uro said he usually starts checking at 2-3 years and then every year thereafter.

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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9 years 3 months ago #33040 by Patricia
Hi Mike,
Whats with these oncologists who don't believe in B12 deficiency?? I have one also. Give him this..its from Hopkins
http://www.ncbi.nlm.nih.gov/pubmed/8426395
I actually ran as low as 240 within 9 months of my cystectomy.
I think your local uro might just be curious??? I'd throw it by my original surgeon at Hopkins especially if everything is running smoothly.
pat

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9 years 3 months ago #33033 by EG1680
Forgot to mention that I had a neobladder operation at hopkins 2.5 years ago. The Urologist is my local dr. not the one who did the surgery.
Mike

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