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Indiana Pouch and Stoma

9 years 10 months ago #33089 by Sassy
That redness in the photo was the lighting and camera. I use olay moisturing for bathing. The only time I have had a problem is in the summer and I have been outside a lot, or I have eaten something that doesn't agree. When I came home from the hospital...15 yrs. ago...the only information I got from a nurse was...I am not sure what to tell you...here's some stoma patches...see if any of them work. I don't need a stoma patch because I don't leak very often. Besides, I am allergic to all kinds of adhesive on tape. What I figured out to do when I want to be sure is cut a CareFree panty liner in half. Put it in position and let it stick to my underwear. Does the job...no patch...no tape sticking to my skin. Works like a charm.

Sylvia L. Ramsey

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9 years 10 months ago #33023 by Patricia
I was wondering about that reddness Sylvia. When i came home from the hospital the stoma nurses told me to use Dial soap and i was continually red and itchy...turns out i'm allergic to the soap! Figures. I'm allergic to anything with a perfume in it..so i really just use a Viva towel just with water to wipe the stoma and then dry it (i find Viva is the softest)..and i've never had the problem since.
As for location.....its actually more difficult to do the stoma at the navel site..heaven forbid those surgeons spend a little extra time in the OR.....Anyway, i did have to have a second surgery due to my local uro yanking out the remaining J tube and trapping part of my ileum under my ureter...now that was fun. 9 days after the original operation i was back in and making life so much fun for the nurses with my projectile vomiting...Linda Blair has nothing on me!! No problem with the surgery...but then again my original surgery was done laproscopic..so much for my vanity!!..Still had to get the big cut down the middle but i had a very good surgeon whose mother taught him a mean whip stitch..no staples...no scars.
Pat

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9 years 10 months ago #33016 by Sassy
I have an "inny" naval. This is where it is located. You can't see it because it is inside area where the "belly button" is. The color of the picture is redder than I am.

Sylvia L. Ramsey

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9 years 10 months ago #33015 by Melodie
Well girls, I suspect if many of us had seen the photos of the cute navel stomas, prior to our RC, most of us would have wanted one. This makes me even wonder if anyone in my area of the courtry even considers that location...doctors probably think it isn't all that important to us older gals... I know my doctor said he only did it for children...and on adults there was a concern if there was any kind of bowel blockage and they had to do surgery again. Well, what if we had careers in X-rated films; :silly: so they should give us an option.

Guess I can't any longer imagine those inny/outty stomas as being less than cute..Still and all, I love my dear Rosebud. :)

Melodie, Indy Pouch, U.W.Medical Center, Seattle, Dr. Paul H. Lange & Jonathan L. Wright

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9 years 10 months ago #33014 by Patricia
Sylvia..mine was made 8 l/2 yrs ago and really looks like a belly button...very small. I guess it might depend on the surgeon.??
I wish i was computer savy and could figure out how to post mine.
But yours is very cute also!!!
pat

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9 years 10 months ago #32995 by sara.anne
Thanks for the picture, Sylvia. I must admit that I have been curious!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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