Thanks to all for your wonderful advice! I am happy to report that this week we were able to get mid-July appointments with Dr. Schoenberg and Dr. Eisenberger at John Hopkins, sooner than what we had before. Pat - It is great to have the information on the doctor at the National Institute of Health, we might have to see him in the future.
Been wracking my brain to find a dr. at the National Health Institutes who trained at Johns Hopkins and thanks to Mike I found him. Its a thought as he's a very experienced surgeon if you're having problems with Hopkins.
Dr. Peter Pinto
Charlene is very good about making things happen, I had ta grade 2 and Dr S was my second op. I decided along time ago if I ever got cancer I would go to John hopkins.
The people on here are very smart about giving out the right info so it is good you found them. goodluck. Rocky
9 years 8 months ago - 9 years 8 months ago#32661by mmc
Sounds like you are doing all of the right things. Hope that gets him in earlier.
Let him know that bladders are greatly overrated! It sure sounds like he has one nasty bladder.
There are some very good choices for urinary diversions when having the bladder removed. Schoenberg can explain the details about neobladder, Indiana Pouch, and ileal conduit and why one would be chosen over another as first, second, and third choice.
They often don't know for sure which option one winds up with until they are in there.
Thanks Pat and to every one of you for the wonderful information you are sending. This is all very helpful. We are already emailing Charlene and Dr. Schoenberg. We are also going to call them again tomorrow.
Pat - He was diagnosed with one tumor that is T2 high grade invasive; a second that is carcinoma in situ; and a third that is non-invasive. I was looking at the pathologies (he had three done) but I did not see anything about clean margins. He had a CT Scan, cystoscopy and resection done about two weeks ago. After the resection, they gave him Mytomicin for two hours. Given this information, I am not sure how long he can wait to start any treatment. That is what makes me really nervous.