Back Home and Lessons Learned from blockages

14 years 4 months ago #29189 by rudyskier
Replied by rudyskier on topic Back Home and Lessons Learned from blockages
I agree with Mike that an understanding between the nursing/hospital staff and you needs to communicated to the point that they truly understand what this is all about. That said; and I hope this never happens to any of us, if you are incapacitated or unconcious for some reason then like Mike my wife totally understands and communicate what needs to be done. This is also why I have my URO surgeons name as contact on my MedicAlert.

Rudy

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14 years 4 months ago #29180 by mmc
I did quit wearing the bracelet but I do still carry the card.

Pat's idea sounds good.

My plan is to always make a point of explaining in detail so I can see the comprehension on their faces for myself. A blank stare will get a repeat explanation in a different way until I finally see that they "get it". Also, my wife knows to tell them all the stuff about foley catheters and straight catheters in case I'm incapacitated.

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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14 years 4 months ago #29179 by Patricia
Replied by Patricia on topic Back Home and Lessons Learned from blockages
Personally i borrowed my 6 yrs olds washable markers and for my surgery on the 28th i plan on drawing circles around my navel stoma with an arrow and "Cath here". I may use duct tape in the lower regions with "Don't even think about it!" written there.
I have the bracelet with Indiana Pouch on it...but that really doesn't do much good as they think i'm from Indiana and can't figure out the pouch part.
I've asked for a Uro consult prior to surgery...so we'll see.
Pat

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14 years 4 months ago #29178 by kcnorthstar
Replied by kcnorthstar on topic Back Home and Lessons Learned from blockages
Thanks Rudy,

Sounds like it would be way more effective than just the little note I have pasted to my drivers license -- Ill check it out.

KC

Age 59
DX Jan 2006 - T1B G3
RC - Neobladder June 2006

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14 years 4 months ago #29177 by rudyskier
Replied by rudyskier on topic Back Home and Lessons Learned from blockages
KC and all interested parties: Here is the info you can do it all on line
www.medicalert.org
MedicAlert
2323 Colorado Ave
Turlock, CA 95382
1-800-432-5378

What I got was the Medic Alert Advantage enrollment for $39.95
and the stell small Emblem braclet for $9.95

This is a national organization that all Emergency Service personel and hospitals, doctors etc. use. I know I used to be a cop back in NY.

They will give you an ID which links to your medical information including medications and things like NeoBladder catheterization. Physician contacts and personal contacts like wife or whomever you wish.

You may update the records free of charge. There is an annual renewal fee of which I am not sure of the amount. This may be covered by insurance or is deductable as medical expense, you can check on that.
You get Window sticker for your auto a refrigerator magnet and a wallet card.

So there you have it.
Rudy

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14 years 4 months ago #29176 by kcnorthstar
Replied by kcnorthstar on topic Back Home and Lessons Learned from blockages
Rudy,

How much did all that cost? Where did you get it from?

KC

Age 59
DX Jan 2006 - T1B G3
RC - Neobladder June 2006

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