digestive trac

14 years 5 months ago #27963 by mikeg
Replied by mikeg on topic digestive trac
Hi all, I'm close to 2 years out of a neobladder and the digestive problems I have is that I have have to go to the bathroom many times a day, maybe 3-5 times.It's weird that all of us respond slighly differently. I am worried about the B12 problem and plan to have it tested every year or more. My doc doesn't want to do the more extensive test so I guess I'll just wait and see for now.

Otherwise, all systems go for me as of now and I'm glad I got the neo. I don't catheterize and can have sex. The only reminder is the mucos that still comes out when I pee. It keeps me in check and aware of my mortality.

Recently I've met 2 men with BC and have recomended this forum as it was a great benefit to me and my wife.

Mike Greenberg

Michael
Age 58
Stage T2-T3, muscle invasive
Married to Eileen
2 sons, ages 20 and 23

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14 years 5 months ago #27911 by Patricia
Replied by Patricia on topic digestive trac
Well they did advocate a conservative approach with it but i just think he should know about it before you do have any symptoms and i further wonder if that mixture could not be contributing to the stones in the bladder??? Its quite a coctail:S
xxoo Pat

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14 years 5 months ago #27910 by Melodie
Replied by Melodie on topic digestive trac
Pat,

I know I'm special but really, 3 out of 146 patients per the article...I'm not THAT special...and it talks about gastrointestinal symptoms but I haven't had any digestive issues....so I think I am just fine. However, in the interest of science and curiosity, I will take this article to my doctor at next visit and will also present him with some of my finds that I have saved from emptying. Thanks.

Melodie, Indy Pouch, U.W.Medical Center, Seattle, Dr. Paul H. Lange & Jonathan L. Wright

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14 years 5 months ago #27899 by balihigh
Replied by balihigh on topic digestive trac
I have an illeal conduit and one year out of surgery. I have never experienced any sort of digestion problems. We recently received some junk mail advertising something to correct bowel problems. There was a list of how your bowels should be actively and mine were great for every question.
Balihigh

female 60
1/08 dx 4 tumors TURB
T1 G3
12 BCG + interferon
5/08 another tumor/TURB
9/08 RC illieal conduit

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14 years 5 months ago #27893 by Patricia
Replied by Patricia on topic digestive trac
A fistula is an abnormal opening between two organs that should not be connected.
Melodie...read this..an Entero-Pouch fistula and tell your doc about it.
www.sciencedirect.com/science?_ob=ArticleURL&_udi=B7XMT-4HMXJMV-7&_user=10&_rdoc=1&_fmt=&_orig=search&_sort=d&_docanchor=&view=c&_acct=C000050221&_version=1&_urlVersion=0&_userid=10&md5=218e70004328f5015f1c3a5d51a865b1
Pat

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14 years 5 months ago #27892 by Melodie
Replied by Melodie on topic digestive trac
I've been told this by another warrior and just glanced at a definition on the Internet...doesn't sound good...if it means the doctors get to give me another puncture wound...no, thank you, I think I'll skip it. :ohmy:

As it is I have that concern in regard to stones re-occuring as I've been told next time they won't be able to go thru the stoma. Stones or Fistula, I'm not planning on another procedure unless I'm seeing any signs of discomfort....as it is, I feel fairly good most of the time, inspite of the strange things I find in my urine. Since I use a clear container to catch at home, it sometimes looks like the bottom is covered with sand...which I hope is the stones material breaking loose and leaving the bladder rather than forming stones. :)

Melodie, Indy Pouch, U.W.Medical Center, Seattle, Dr. Paul H. Lange & Jonathan L. Wright

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