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Cysto, self cath training, and \"the shot\"

10 years 3 months ago #26599 by GKLINE
Way to go Mike. Just the tone of your typing sounds better. I am sure the test will come back OK. You know we're pullin for you.

George:lol: :lol:

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]

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10 years 3 months ago #26566 by mmc
Lee,

Seems we are on the same page. I asked my uro that very question. He said that it could shrink it some over time. It's not going to return to 400cc capacity but it will shrink some.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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10 years 3 months ago #26565 by reseda1420
Yes, I have found that taking a break and coming back, particularly after moving around can give quite a boost in volume the second and subsequent times. the folding thing makes sense and would account for everything. I think I have read of similar issues among the folks here with folding of the neo.

That is a good idea about cathing prior to resolve the issue, particularly if you are having a retention issue now.

I wond if going more frequently will allow the neo to shrink down a bit or is it once its stretched - that's it.

Lee

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10 years 3 months ago #26563 by mmc
Lee,

He said something about a fold-over or something like that being a possible issue since my capacity has increased quite a bit. Suggested going, waiting an hour and going again after some moving around.

I'm starting to think maybe I've just not been diligent enough. I forget to go and then when I do I get impatient. I probably have been draining 3/4ths of it and then going about my business, which then gets full again and I start noticing the fullness feeling or kidney feelings and then go again.

He checked the urethra multiple times very slowly and then he had the camera right near the urethral sphincter and asked me to open it and close it. Didn't know I could do that on command like that but it looked just fine. Opened nicely and closed tightly. He also checked out the ureters (unrelated and they looked good).

Since my original diagnosis was CIS non-invasive, I had an office cysto every three months so I was getting used to them. Not liking them, mind you, but getting used to them. Always asked for the lydocaine gel and at least 10 minutes after the gel to give it a chance to work before beginning. My local uro and my cancer center uro never had a problem with that. They are certainly much easier when your sleeping.

The cath thing was certainly way less trouble than I thought it would be. Kind of like the monster under the bed just being a dust bunny. :)
Once you turn the light on (try it) the scaryness goes away.
I was thinking it that it would probably be a good thing to do prior to sex. If residual urine could be a problem, maybe getting rid of it all would be a good thing. That way there isn't the concern about that.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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10 years 3 months ago #26560 by reseda1420
Mike,

Glad to hear the cysto went well, but it doesn't explain the high residual. Was he able to explain why you would have such a high retention?

At least having the ability to do a self cath if needed sounds like a really worthwhile skill to have.

Of course we wouldn't expect you to post your "test" results with the shot but a detailed critique from the "testee" would be nice:P

By the way, I also didn't find the cysto to be much of an issue after the neo went in but I was out during my initial cysto in the hospital so I don't have anything to really compare it with.

Lee

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10 years 3 months ago #26555 by Moonerj
Sounds like very good news Mike.
Happy for you.
Jack

TA Grade 1
3 Turbts
30 BCG Treatments
Cancer Free since Nov 2007

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