Old Neobladder - New problem

14 years 10 months ago #25568 by mmc
Replied by mmc on topic Old Neobladder - New problem
KC,

Sounds like great news!

I understand your comment about worries. Seems natural to be concerned when symptoms can potentially be a return of cancer. It's the old "Hope for the best but be prepared for the worst" thing.

Here's to hoping that the news continues to be good!

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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14 years 10 months ago #25567 by alsimons
Replied by alsimons on topic Old Neobladder - New problem
Dont worry about the insurance company............take care of yourself. Sorry about your back pain, but in this case its sounds like good news.

WTG

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14 years 10 months ago #25560 by kcnorthstar
Replied by kcnorthstar on topic Old Neobladder - New problem
Ok , so my cystoscopy was ok, my CT scan was clear, my bone scan was clear and all my blood and urine tests came
back OK.
My GP sent me to a physical therapist for the back pain I have been having for the past 8 months and he says I have a sliped disk in my back. I have had 2 sessions with him and my back pain is about gone. After all the stress worrying about a recurance, it turns out to really be a muscular/schelaton back problem. I guess I dont feel bad because my uro and GP both went straight to all those tests.
On one hand I guess you have to be carefull to look for recurrence, but you also have to be aware that not every little pain or simptom is return of the C. Where do you draw the line? Im sure I am hated by my insurance company.

KC

Age 59
DX Jan 2006 - T1B G3
RC - Neobladder June 2006

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14 years 11 months ago #25485 by GKLINE
Replied by GKLINE on topic Old Neobladder - New problem
Your post has put into words what has been hounting me since my surgery. I sometimes wake at night and wonder....If
If they got it all
If I will have more
If something is still floating around in me
If I will get back to normal
If that pain is normal or something else
If I am a pain in the butt to my family
If I should get out of my business and find something else
If I will ever just put this behind me
If...If...If
Whew! My Spider Senses were tingling when I read your post... I wonder the same things you do. I sometimes feel foolish for jumping at shadows. I thought I was just being foolish. I'm feeling less foolish knowing that others have the same thoughts.

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]

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14 years 11 months ago #25394 by Patricia
Replied by Patricia on topic Old Neobladder - New problem
I actually read a article from Henry Ford Hospital where they said
the constant irritation from the bike seat and microtrauma from running could easily explain your symptoms. It is not uncommon for cyclists to have a urethritis and runners to have some blood in the urine.
Pat

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14 years 11 months ago #25392 by Andy_D
Replied by Andy_D on topic Old Neobladder - New problem
One other thing:

I wrote about this about a year and a half ago titled 'Occasional hematuria 1 year after neobladder'.

There were a few responses from others with a similar story - might be worth a read.

All the best,

Andy.

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