Neo questions

15 years 2 months ago #24208 by Betsy Mae
Replied by Betsy Mae on topic Neo questions
I was under the impression that all neobladders were made from the small intestine.

Betsy Mae

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15 years 2 months ago #24205 by Patricia
Replied by Patricia on topic Neo questions
I don't think we have many on here who are past the 2 or 3 yr mark with the neobladder and i wonder if they actually know if their neo was made from the large intestine or small?
Here's one study from Japan with long term follow up of the neo made from small intestine.
jjco.oxfordjournals.org/cgi/content/full/35/7/391
I wonder if this might get more respose from the ACOR list?
Pat

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15 years 2 months ago #24200 by Cynthia
Neo questions was created by Cynthia
This is from a survivor named Stu that I recieved an email from could some of you help him with his questions please?

I am interested in finding the LONG TERM (five years plus) experiences, problems and issues if any, of all recipients of a Neobladder (i.e. removal of cancerous bladder and replacement from small intestine). Also would like to know how many
have survived with same after ten years and the problems thereafter.
Thank you for references, comments, etc

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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