Hi Mona, Good news is always nice to hear. I had a ctscan and an upper gi and they sent me home from the hospital saying that I was fine. the next day my daughter found me in the bathroom bleeding to death from an ulcer. I spent a week in the icu. and the surgeon said it was one of the most impressive ulcers he had seen. Talk about not reading the test right ! So you just have to stay alert. (I told them I was dying) they just thought I wanted pain meds. Go figure. Rocky
Mona...i always have my scans done at the same place and read by the same pathologist. I learned that one the hard way...one newer pathologist not familiar with the Indiana Pouch actually said i had gallstones....I called my regular pathologist to please re-check and he called me back and reassured me that NO indeed i did not have gallstones and that the pathologist wasn't familiar with the pouch!...As a backup i also send my scans to my original surgeon at The Cleveland Clinic just to make sure everyone is on the same page.
It sometimes takes forever for them to get on the right desk but eventually they do!! Its interesting but i've found that most doctors know who the best pathologists are.....thankfully my internist led me to the one who usually gets it right.
My motto always ...second opinion...whether it be surgeon or pathologist. Makes me real popular......... Pat
My husband had his RC just over 2 years a go. His 2 year CT showed "two new prominent nodes". After discussion with the oncologist and urologist we waited for 2 months to rescan. The new scan showed that the nodes were unchanged which was good news. We have also now discovered that those "new nodes" had been present in all previous scans and unchanged! That of course is even more of a relief! We do, however, have some level of frustration amongst our joy that this was not checked previously, before my husband underwent an unnecessary scan and the extreme worry over the last 2 months. Just thought I'd mention it so that others are aware to ask which and how many scans are being compared to make sure accurate information is given. What concerns me is that this time the error was in our favor, but it may not have been. All in all, very thankful that he is 2 years, 3 months out from diagnosis and doing well!