A new issue

15 years 2 months ago #23974 by mmc
Replied by mmc on topic A new issue
Sorry to hear about the troubles but it sure sounds like they are on top of it with you. Best of luck!
Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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15 years 2 months ago #23945 by Julie
Replied by Julie on topic A new issue
I am sorry things got so rough for you Will. I hope they Docs can help your kidney to function full blast again and that your time with a nephrostomy tube is short term.

Sending good wishes, Julie

Volunteer Coordinator
ABLSC

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15 years 2 months ago #23941 by balihigh
Replied by balihigh on topic A new issue
I am so sorry to hear of all your problems. I certainly hope that the problems have been discovered and that you are on the road to recovery. You helped me so much during my RC that I wish I could be of more comfort to you now. Know that I am sending all my positive thoughts your way.
Nancy

female 60
1/08 dx 4 tumors TURB
T1 G3
12 BCG + interferon
5/08 another tumor/TURB
9/08 RC illieal conduit

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15 years 2 months ago #23930 by Stephany
Replied by Stephany on topic A new issue
Will, I'm so sorry you had to go through that, but it sounds like you're getting some answers. I hope now that the neph tube is in, that your pain has subsided. How're the stitches doing?

Stephany in Iowa

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15 years 2 months ago #23926 by SailorMan
Replied by SailorMan on topic A new issue
So, as some found out in chat, I've had a decidedly busy couple of weeks on the medical front. On Friday the 23rd of Jan, I went to the hospital for a nephrostomy - installation of a neph tube and dye tests/scans and was supposed to be done in a couple of hours and go home with a neph bag while they figured out what to do next.

Well, they went to insert the neph tube and found a kidnet infection so there was no going home, at first they thought 2-3 days in the hosp but once the cultured the infection they discovered that the only antibiotics that would work were IV only so I had to stay for a full week. While I was there they triied to do the neph scan of the ureter again but saw blockage. A couple of days later, they tried to stent the ureter but were not able to get through the blockage. Meanwhile the discharge from the neph tube turned to a normal color (no more pus) although volume wise it is not producing anywhere near the amount that the other kidney is (based on the volume of urine that I produce).

Finally, I was discharged on the 30th (Fri) and my doc wants to try again on the stent in a couple of weeks after the "dust settles" and hopefully the kidney starts producing more urine.

For me, the neph tube process caused me a LOT of pain but according to the radiologist who did it, that was probably because my kidney was a bit higher in my body than most people and he had to do a lot of manuevering and pushing against the ribs to get to my kidney. Either it was just that or that plus pain from the infection but I had some pretty bad chest/rib pain for most of the week.

So, now we'll have to wait and see what happens in the next few weeks.

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15 years 2 months ago #23708 by DougG
Replied by DougG on topic A new issue
Will,

Glad you are getting treated for the kidney infection. Hope you are able to get out of the hospital on Sunday. Our prayers are with you.

Anita and Doug

Anita
Forum Moderator
Caregiver

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