It’s always something---what’s behind curtain #3

15 years 3 months ago #23423 by Stephany
Cynthia, this just is NOT fair, and you can scream as loud as you want. Make the sky ring and the clouds shiver.

And you are most brave, my brave friend, because you know what lies on the other side of the surgeries and the diagnoses, and the surviving, and yet you fight on.

So, take some time to vent, some time to be really sad. It won't change the results of the tests, but it might change the outcome, because it will give you strength to go on, to see the gift of great diagnosticians, of great surgeons and hospitals, and great nursing staffs.

We'll all do what we can to help. Just ask. At least we can do it without fighting that nasty weather. You're the one who has to travel and cope.

Sleep well, friend.

Stephany in Iowa

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15 years 3 months ago #23422 by Mona
Oh Cynthia, I'm sorry you are going through this. I know you'll keep fighting and I'm thinking of you,
Mona

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15 years 3 months ago #23421 by sydelle
There is only 1 choice; to push foward and look to the sunshine of the next day. Cynthia my prayers and thoughts are standing right behind you,

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15 years 3 months ago #23420 by Webs
I'm trying to think of something to say, but nothing is coming to mind. I'm glad your a survivor and your braver than you think. The bravest people are the ones who recognize fear and still fight on. You lead by example and I am proud to know you.

That being said I am thinking of you, and praying for you.

Charlotte

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15 years 3 months ago #23419 by Cynthia
Well the tests have been reviewed, first and second opinions obtained and the word came down from Chicago today. “Removal of the left kidney and ureter, the kidney functions poorly and I am concerned about the possibility of urothelial cancer in the left kidney and ureter.” Not what we wanted to hear but as life tends to do we heard it anyway. So I am the proud owner of a broken kidney that may or may be cancerous with a completely blocked ureter that may or may not be cancerous. After weighing the options it seems the only real option at this point.

So how do I feel about that I mean after the panic attack went away that is. Mad really really mad, kick the wall and yell at something mad. I don’t want to be doing this anymore I think if life was fair it would all just go away. People are always telling me how brave I am and I always smile and think if they only knew the truth. I am scared, scared of the pain, scared of the future, scared of running out of parts that I can somehow do without. What they see as brave is doing what we have to do to get through to the other side or well or the new normal. When faced with serious illness we can either take plan a or plan b. Plan a is to fight and do what we have to do and plan b is to do nothing. I always take plan a as plan b scares me even more than plan a. So if not brave what does that make us? It makes us survivors……..sometimes surviving to fight another day. Survivors fall down and they keep getting up and not only that they find a way to keep going forward doing what has to be done. I have gotten to the place I like being called a survivor to me we are strong resilient people not a bad thing to be I should think.

We will be leaving for Chicago on Jan. 25th surgery the 29th and will be back we hope by the week of Feb. 10th. While we are there I will have internet and work as much as I can. I will be recruiting a few of you to give me a hand around here to keep the place running smoothly. And the rest of our wonderful board will be here to help also. And I promise to keep you updated maybe blog a bit as I go along. And then when I am healed we are going to double our efforts to get the word out about blc and making sure that no one has to go through this alone. I am sure glad I don’t have to.

Chin up and straight forward

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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