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Choosing the right Doc & Hospital

10 years 11 months ago #21964 by Patricia
just to claify...i was T2a but only Grade 2.....if i had been grade 3 chemo would have been suggested. I actually had 5 opinions on it....including Dr. Stein at USC/Norris, Johns Hopkins, The Cleveland Clinic, Indiana U, and MSK.
Pat

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10 years 11 months ago #21959 by Cynthia
There has been research done and many specialists are now using chemo prior to Radical Cystectomy. I know many of the survivors here have gone that route when it has been recommended. I was also T2 G3 and that was what was recommended to me by one of the teams I had a second opinion from. I chose to try a clinical trial to try to preserve the bladder and had chemo and radiation as part of that prior to my Radical Cystectomy due to reoccurrence.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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10 years 11 months ago #21958 by Patricia
No i did not have preventive chemo. On the second turb all margins and cancer was removed by Dr. Herr. I only had one tumor..actually quite small but lethal. All my scans were clean and I proceeded with the cystectomy 2 months later and removal of 36 lymph nodes which were also all clean so i escaped the chemo route. If the pathology on the second TURB shows more progression then yes chemo would be indicated..or if the CT scan showed up any involved nodes.
Pat

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10 years 11 months ago #21957 by kittylee
2nd Turbt tomorrow and ct scan. So, did you have preventative chemo prior to surgery?

I am a caregiver to my wonderful husband, Ron
10/04 Multiple T1G3 - TURBT & 3 yrs BCG -
9/08 Invasive BLC w/distant mets
11/08 - 3/09 Gemzar/Cisplatin chemo regimen
4/09 Radiation to bone mets
6/09 lung and liver met progression - start ITP chemo
10/09 My darling Ron passed away

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10 years 11 months ago #21956 by Patricia
kitty...that was the exact pathology i had....but i had a second TURB at Memorial Sloan in NYC..they rarely make a mistake in staging. What its saying is its invasive into the superficial layer of muscle and that node or distant mets cannot be determined. Has he had a CT scan, a bone scan, chest x-ray, blood work?
I'm just surprised he didn't suggest a second TURB?
Pat

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10 years 11 months ago #21955 by kittylee
Sorry I didn't answer all of your questions. Grade 2/3, musle invasive, 2nd Turbt tomorrow to cauterize bleeding and look/scrape

I am a caregiver to my wonderful husband, Ron
10/04 Multiple T1G3 - TURBT & 3 yrs BCG -
9/08 Invasive BLC w/distant mets
11/08 - 3/09 Gemzar/Cisplatin chemo regimen
4/09 Radiation to bone mets
6/09 lung and liver met progression - start ITP chemo
10/09 My darling Ron passed away

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