Help from WOMEN with NEO BLADDER

15 years 6 months ago #21606 by Melodie
Replied by Melodie on topic Help from WOMEN with NEO BLADDER
Barb,

No matter what diversion your sis ends up with...we are here for you...a wealth of experience can be found here, in all areas, whether it's the ileal, the Indy pouch or the neo. And if we don't have the answers, we will surely work with you to try to find out...most importantly, as someone said earlier, we are here to listen, comfort, encourage, pray, even cry with your sis and you. Let us hope for the best, remain positive and pray for strength. I will be praying she will be just fine...stay in touch. God bless. Hugs to you both. Melodie

Melodie, Indy Pouch, U.W.Medical Center, Seattle, Dr. Paul H. Lange & Jonathan L. Wright

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15 years 6 months ago #21599 by eddiek
Replied by eddiek on topic Help from WOMEN with NEO BLADDER
Barb,

We'll be thinking about you and your sister next Tuesday! If you have any last minute questions, please consider joining the Sunday evening chat at 8:00 p.m.(ET). It's a good group of folks with a lot of experience as survivors and caregivers.

Please keep us posted when you have time.


Ed K.

Edward J. Kinsella
American Bladder Cancer Society
Board of Directors - Treasurer/Secretary

& Caregiver

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15 years 6 months ago #21596 by Sam91403
Replied by Sam91403 on topic Help from WOMEN with NEO BLADDER
Perhaps your sister could call USC Norris to talk to one of the excellent doctors there. They may be able to advise her of a Kaiser doctor that does the Indiana pouch. It is a small community of specialists. Good luck.
Sam

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15 years 6 months ago #21584 by Barbw
Replied by Barbw on topic Help from WOMEN with NEO BLADDER
You ladies always make me cry but they are good tears at knowing I have your loving support. When I get to my sisters I will set up her computer with this web site and try to teach her to use it. She had brain surgery many years ago for epilepsy and it is difficult for her to do computers. If she can't do it then she can work through me and I will pass all your words of support on to her via email or phone. Love, Barb

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15 years 6 months ago #21581 by Melodie
Replied by Melodie on topic Help from WOMEN with NEO BLADDER
Barbara,

Well whoever said this lousey medical system was fair to all, more esp. to women....*$($*%)(#+ ! :angry: I feel bad for your sister that she doesn't have more options but I guess I have to look at the bright side and say, well, at least she has an option. And she has your strength and support to help her along this difficult journey. I will pray that all goes as well as it possibly can for her surgery. I pray this doctor can in fact, deliver what he indicates he can...the best results for your sis. I am marking that day on my calender to pray more in depth for her that day and for you...those waiting while the doctors work is no picnic either. Take care, Hugs. Melodie

Melodie, Indy Pouch, U.W.Medical Center, Seattle, Dr. Paul H. Lange & Jonathan L. Wright

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15 years 6 months ago #21565 by Barbw
Replied by Barbw on topic Help from WOMEN with NEO BLADDER
Thanks Patricia, See my response to Melodie as it applies to you too. Barb

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