Forum

× click new topic to begin your post

Help from WOMEN with NEO BLADDER

11 years 5 days ago #21800 by Silk
I HAD MY SURGERY HERE IN MIAMI AT JACKSON MEMORIAL. THE SURGERY WAS 7 HOURS AND I WAS IN THE HOSPITAL FOR A WEEK. I WAS UP AND OUT OF BED THE NEXT DAY, WOW WHICH WAS NOT EASY WITH ALL THE TUBES.

I WAS OFF WORK FOR 3 MONTHS, DOING MY KEKELS AT LEAST 15 TIMES A DAY AND NO LEAKAGE DURING THE DAY NOW AND AT NIGHT I AM UP ABOUT EVERY 2/3 HOURS AND NO LEAKAGE. I WANT TO SAY FOR 2 YEARS EVERY 3 MONTHS I WENT FOR MY SCOPE, HAD A PULP AND SURGERY, EVERY 3 MONTHS, (IT WAS A LONG TWO YEARS) A SET OF 6 BCG TREATMENTS AND THE LAST SURGERY BEFORE MY BLADDER REMOVAL FOR SOME REASON IT HAD GOTTEN INTO THE LINING. I BELIEVE THINGS HAPPEN FOR A REASON FOR I WAS SO DILIGENT IN MY SCOPES EVERY 3 MONTHS FOR 2 YEARS AND IN THE END I LOST MY BLADDER, BUT BELIEVE ME, ALTHOUGH NOT EASY TO GET THROUGH, THINKING POSITIVE IS A MUST!!!!!!!!!!!!!!!!!

A POSITIVE ATTITUDE IS 95% OF THE BATTLE, AND GET OUT OF BED AS SOON AS THEY TELL YOU TO, WALK AND WALK IN THE HOSPITAL, AND WHEN THEY TELL YOU TO SIT DURING THE DAY, LISTEN!! ALL THIS HELPED ME, AND I JUST SAW THE SURGEON AND DO NOT NEED TO SEE HIM TILL FEB., ALTHOUGH HE WANTS A CAT SCAN AND BLOOD WORK DONE DEC. 2. I AM SURE ALL WIL BE FINE. I FEEL GREAT AND EVERY ONE SAYS I LOOK BETTER THAN EVER. I DO TAKE VITAMINS, SO PERHAPS THAT ALSO HELPS.

THIS IS MY SECOND CANCER SURGERY IN TWO YEARS, LAST YEAR I HAD PART OF A LUNG REMOVED, AND AGAIN, THANK GOD AND A POSITIVE ATTITUDE NO PROBLEMS.

IF ANY ONE HAS ANY QUESTIONS, BAGS, CATHS. SHOWERS, ETC. I WILL TRY AND HELP.

LINDA

Please Log in or Create an account to join the conversation.

11 years 5 days ago - 11 years 5 days ago #21798 by Silk
HI

I HAD A NEO BLADDER PUT IN MAY 6, 0F THIS YEAR AND WOULD BE HAPPY TO HELP WITH ANY QUESTIONS OR CONCERNS.

YOU CAN E MAIL ME AT Silk using the onsite email

IT WAS A TOUGH 3 MONTHS, BUT I AM DOING GREAT, BEEN BACK TO WORK FULL TIME SINCE AUG 4TH.

PLEASE IF YOU HAVE ANY QUESTIONS, DO NOT HESITATE TO CONTACT ME.

I LIVE IN MIAMI AND I AM 62.

LINDA

Please Log in or Create an account to join the conversation.

11 years 1 week ago #21742 by bront
Hi - I had op on July 12th so am 13wks on - pretty good continence during daytime but night time still bit of a problem maybe I am too impatient - how are you doing at night ? Any tips appreciated

bront

Please Log in or Create an account to join the conversation.

11 years 2 weeks ago #21653 by Patricia
Hooray Silk.....where did you have your surgery done? Tell us more. We love success stories.
Pat

Please Log in or Create an account to join the conversation.

11 years 2 weeks ago #21646 by Silk
HI,

I HAD A NEO BLADDER PUT IN MAY 6, 08. IF YOU HAVE ANY QUESTIONS I WILL TRY AND HELP.

I AM DOING GREAT AND BACK TO WORK AFTER 3 MONTHS.

SILK

Please Log in or Create an account to join the conversation.

11 years 2 weeks ago #21645 by Silk
I HAD A NEO BLADDER PUT IN MAY 6. ANY QUESTIONS I WILL BE GLAD TO TRY AND ANSWER, AND HELP.

SILK

Please Log in or Create an account to join the conversation.

  • Not Allowed: to create new topic.
  • Not Allowed: to reply.
  • Not Allowed: to add Files.
  • Not Allowed: to edit your message.
Moderators: Cynthiaeddieksara.anne

Users

Total Online: 0 Users and 1563 Guests 

Statistics

Today Total Opened: 0 Today Total Answered: 0 Latest User: Vls57
Yesterday Total Opened: 0 Yesterday Total Answered: 0
Total Posts: 52796 Total Subjects: 6870 Total Users: 8449
Powered by Kunena Forum