I am female and have had my ileal conduit for 2 years next month with no UTI's.My surgeon, local urologist and many urostomates have all given me the same advice. Change every three days. After 3 days the pouch starts to build up bacteria so changing every 3 days really helps in preventing UTI's. I have read where many people leave their pouch on much longer but I find this works for me.
I have had my Illeal Conduit for 15 months today. I have not had any infections or UTI problems.
I do feel pretty comfortable talking about ways that work for me as far as pouch fit and leak prevention.
I went through several types until I found the one that works for me. Each body shape is different; so the pouch will stay "sealed" at varied levels of effectiveness based on your shape.
My surgeon shared with me that one factor that goes into both quality seal and prevention of infection is the length of the stormo.
He found that making a longer stormo helps prevent leaking and reduces infection. My stormo sticks out of my abdomen about 1 1/4 inches. It sticks well above the pouch and extends far into any bag.
Obviously, you can't do anything about the length of your stormo, so I can provide my tricks of applying the patch and leaking my bag that works for me.
If you want to talk on the phone, just send me a personal message and I will pass my phone number on to you.
Hang in there.... RAH will try to reach you later today as time permits...it's better if a guy who has that diversion shares what he knows...hopefull that will help. Take care and adding you to my prayer list. Melodie
Melodie, Indy Pouch, U.W.Medical Center, Seattle, Dr. Paul H. Lange & Jonathan L. Wright
I've got an ileal and have had two UTIs/Kidney infections in two years. My doctors have not suggested ongoing antibiotic use. They simply recommend lots of liquids and going to the doctor/ER when fever and chills occur.
Sydelle...i wanted to bring this back up to the forefront as i don't think many have seen it. UTI's are a sometimes complication of ileal conduits as well as neobladders..not as much with the Indiana as it has a valve to prevent backing up of urine into the ureters and kidneys. Does your husband change his bag frequently?...i know you said you've tried about l5 different ones and they all leak....perhaps some of the guys with ileals will give you some helpful info on how to apply and how they found the best for them.
I know sometimes they will keep you on a dose of antibiotic for as long as 6 months with recurrent infections...maybe thats what Dr. Bochner is referring to?
Hopefully RAH and some of the others with an ileal will help you out.
My husband was hospitalized with 103 temp,and shaking chills, high white count 6 months after RC, with ostomy bag. Dr. Bochner, our MD and angel is suggesting daily antibiotic, as precaution for future. Anyone have this experience?