Thanks to all for the great information.
It's a tough choice but from the descriptions I've heard, pretty much any option is OK.
I don't even have one and I have to wear the man pads just due to urgency issues. At times, I get VERY little notice and after a few embarrasing accidents, I wear the pads now on planes and in business meetings.
As for night time, I typically wake up every hour. I consider it a great night if I sleep two hours in between waking to urinate.
90% of the time it burns to urinate or is at least generally not comforatable. Sometimes hurts just walking.
A lot of this is due to BHP (enlarged prostate) so if I wind up w/cystectomy the prostate will go as well which should make those other problems go away.
I actually had a TUMT procedure scheduled to deal with the prostate issue when I started having the blood clots, red wine urine, and kidney pains so that procedure got put on hold.
That's why I started thinking, GEE, a bag might be nice. Hook up a huge one and sit through an entire meeting or sleep through an entire night (just once)! Also, if it hurts to urinate through your penis, it sounds like a fantastic idea to not use your penis to urinate!
It is also the reason I sent this message out for experiences because I didn't want to make a soley emotional decision.
Wouldn't mind the idea of 2 gallon neobladder though either.
But again, thanks to EVERYONE who responded. I think this thread would be great info to others facing the choices (depending on what their doctor feels is possible in their circumstances).
Mike
PS: CT/PET scan results came today:
-No Metastatic disease.
-mass found in thyroid (possible low-grade neoplasm. Recommend fine needle aspiration biopsy).
-something lower left protate, possible primary prostate cancer or inflamation. Need to follow up with PSA and exam.
Since I just had a PSA and biopsy on the prostate three weeks ago, I'm pretty sure it's just inflamation.