To neobladder or not to neobladder, that is my ? 0 Minutes ago
Since my bladder cancer came back (and I can't do BCG) my expecation is that I'm going to have to make the decision on neobladder or stoma pretty soon.
My questions are:
If you did get a neobladder,
-Was it worth it?
-How soon were you able to regain continence?
-What are the things you think are important to know?
If you did not get a neobladder,
-What are the things you think are important to know?
In either case:
-What was the primary reason you chose the option you did?
-How soon were you able to resume normal activities?
-If you had to make the decision again today, would you make the same choice?
-What complications did you experience?
-Is there any option that would offer hope of not having to get up in the night?
-What do you wish you knew before you chose the option you did that you can pass on to me (and others on the forum) to help them decide?
Thanks in advance!
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...