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Cystectomy

13 years 7 months ago #268 by slramsey
I had a radical cystectomy almost 10 years ago. I would be glad to answer any questions you have that I can answer.

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13 years 8 months ago #218 by neula144
Hi, Sharon,
I'm having a radical cystectomy in two weeks. It's being done by a surgical oncologist at a cancer hospital. I think that's the best situation if you can possibly do it; they have plenty of experience and support doing the surgery.
In addition to this site, cancer.gov has a lot of useful information.
Good luck.
Neula

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13 years 8 months ago #199 by wendy
Hi Sharon,

Oh yes, there are many women out here who have faced or are facing a cystectomy. This is a very new board, it hasn't been announced yet to our main group which is an email discussion list, you can find it on the front page of WebCafe. We have about 600 members and share up to 30 emails a day, it's a wonderful supportive, well educated group. If you need immediate input, perhaps that's a better place until this board becomes more well known and used.

What kind of surgery are you looking at? Have you thought about consulting a uro-oncologist for a second opionion and to discuss your options, it's always a good idea to talk to a specialist when it's about cancer.

Wendy

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13 years 8 months ago #198 by sharon
Is there no one out there with invasive bladder ca facing a cystectomy or recovering from one? Do you recommend second opinions? Will a "urologist" do the trick or do we need "surgeons"?

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