My RC date

15 years 9 months ago #18542 by Gene Beane
Replied by Gene Beane on topic My RC date
Maria,
Good Luck, have a great dinner with your hubby,,and birthday party for your son, most of all get home from surgery and on with recovery, lots of prayers coming from Cleveland Ohio......Ginger

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15 years 9 months ago #18540 by Melodie
Replied by Melodie on topic My RC date
Dear Maria,

I may have come on too strong in my comments to you in regard to your choce of diversions, but if so, I did so only because I care a great deal about your results. I want you to have the best quality of life after cancer that is possible. There are no guarantees to any of this BC business and until the doctor gets in there, even he won't know what he can do. I just pray you are pleased with the results and that your life this time next year will be back to normal. Hugs, Melodie
P.S. I will be praying for you on the 3rd.

Melodie, Indy Pouch, U.W.Medical Center, Seattle, Dr. Paul H. Lange & Jonathan L. Wright

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15 years 9 months ago #18539 by RAH
Replied by RAH on topic My RC date
Maria,
Good luck on your surgery and recovery. It is a year ago today that I came home from the hospital after my surgery and diversion. I do have fond memories. It may seem a bit weird, but the time bonded me, my wife and our kids. We now have a special time to look back on that we all shared.

You are in my prayers
Rick

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15 years 9 months ago #18536 by Maria
Replied by Maria on topic My RC date
Could Cindy make a comment?
I note she has neo bladder for quite some time now.
Can't find any old posts and can't figure out how to PM.

Going out tonight for a romantic meal with my husband. The wait for this surgery has been probably one of the most stressful during this journey, I am sure you all know what I mean by this!

Looking forward to my son's 18th birthday party on Tuesday too ............ except I can't eat!!

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15 years 9 months ago #18489 by MrTaste
Replied by MrTaste on topic My RC date
Maria... sounds like you have a great surgeon, one that you believe in, and that's more than half the battle. Everything he's told you sounds right to me, i'm about three months post RC and i have a neobladder, so I can certainly relate to what you're going through (though our original plumbing is obviously different). I had almost two months between scheduling and surgery to get myself good and anxious, and I can also tell you that going in the day of surgery is the best option. My surgery took just a little over six hours, and there was very little discomfort post op... you're going to be on a morphine drip, or the equivalent, so don't be shy about pressing that little button, even if you think it's not doing anything... trust me, it is. One thing i can recommend, and i believe your doctor will agree... as soon as you can following the surgery, get up and start walking... as much as you can. My surgeon told me that my doing so was one of the reasons i recovered so well. It will be a kind of a pain at first, because you're going to be hooked up to a lot of stuff that has to go with you, but take your time, the therapists will help you and before you know it, you'll be 'doing rounds' and feeling better. The incontinence issue is something you're probably going to have to deal with... i'm not familiar with the frequency it affects women, but I can tell you that in my case, daytime usually goes just fine. Nights can get a little damp, but as I always say, it beats being dead. They'll be taking lymph nodes as they go, and sending them to pathology even while you're on the table, so they'll be able to give you a report fairly soon, and the surgeon will probably give you his visual impression when you come out of the anasthesia. If you can think of any other questions, don't hesitate to ask, and try to relax. sounds like you're in very good hands. I wish you all the best and may your margins be perfect so you can kiss the chemo goodbye permanently! mark

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15 years 9 months ago #18461 by Patricia
Replied by Patricia on topic My RC date
Carolyn is only about 3 months out of surgery....i'd like to hear from a female who is more than a year out who is not cathing on a regular basis and has had no urinary tract infections. We don't hear from them after surgery that far out as a rule. I think Melodie is just concerned. My surgeon Dr. Gill would not recommend a neobladder either for a female. I struggled with the decision myself.
Pat

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