Holly, Thanks for your update. This is the first time this week I have had chance to log onto a PC....Northwestern sounds hopeful and willing to join forces with you for the next battle you must face...you are the toughest warrior I know. I will, as always, keep you and your hubby in my thoughts and prayers. Melodie
Melodie, Indy Pouch, U.W.Medical Center, Seattle, Dr. Paul H. Lange & Jonathan L. Wright
Hi, Holly -- I am glad that you are satified with your first appointment at
Northwestern and that a plan is developing to help you fight the good fight
-- and win. The approach sounds thorough and hopeful. You're in my prayers;
please continue to check in and share your experiences there -- be blessed
The appointment went very well. I like the new uro - took time to review my history and paper reports prior to my appt, was very thourough in discussion and physical exam, and explained things to me quite well. He read my films from Oct, Dec and Jan while I was there, too.
He does believe the lesion is metastic unfortunately. Tuesday will be numerous MRIs and CT chest. They are doing labs and cytologies now. And will have a scope of the neo, ureters and renal pelvis next week too. The did an ultra sound thingy to check for residual urine - I had 120 ccs retention. Learning to selfcath is immenent to help save my kidneys. On the 6th we meet again to understand all the findings and discuss clinical trial options. Then on the 10th I meet a oncologist and radiation dr to make a plan to beat this thing. He did say that chemo with radiation is likely and that I may lose the neo for a bag due to the location of the mets. I can live with that to win.
Thank you for all the support and prayers, I beleive that is as important as good doctoring. Praying for you too, God Bless, Holly
PS I am glad I made this choice now