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12 years 4 months ago #12971 by Melodie
Maria, my dear friend,
Sorry I haven't been in internet service went down for four days and just back on within the last couple of hours. And now we have another weekend of snow coming at us so hopefully we don't lose power. I see you are distressed again and that is understandable...we can try to be positive and we all have our moments of doubt, fear, anxiety, frustration....the list goes on...try to stay calm. I know you just want to get things moving. I suspect this time next year you will look back and be amazed at how well you managed this ordeal.

Hold on to hope. From a booklet I have, "Even when it is fragile and desperately clung to, hope is the expectation that what is wanted can be had. Hope believes that events will turn out for the best, that there is a secure future, that good will prevail." "Where there is hope there is life". a quote from Norman Vincent Peale. Stay strong, Maria. Your in my prayers. Have to go now and take care of Ms. Rosebud. Hugs!!! ;) Melodie

Melodie, Indy Pouch, U.W.Medical Center, Seattle, Dr. Paul H. Lange & Jonathan L. Wright

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12 years 4 months ago #12965 by Maria
Thanks for your replies. I am feeling better after discussions with doctor. Oncology is referring me to uro for stent. Anybody had a stent done and what is the usual procedure for this?

Joe, I had a medi port insertion exactly 2 weeks ago with the sole purpose to start chemo, now the oncologist is saying he would rather wait until I see a surgeon on 2/1..............yet more delays!!!!!! It is thought my tumor is causing this blockage.

Don, no IVP yet, I am sure this will be required though.

Alanna, it is interesting that you are not affected. I have had the shivers flank pain and general aches and pains for 3 weeks and just thought it was a flu type bug.Now I am thinking is it associated signs and symptoms of this blockage.

Lisa, believe me, health care in Florida is a culture shock when you are used to the UK system. However, it was my choice to live here and I have to go with the culture as frustrating as it may seem sometime!

I tend not to dwell on the negatives and focus on the positives. I do have my moments of doubt, anger and sheer frustrations!!!

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12 years 4 months ago #12945 by Alanna
Hello there, I still to this day, 4 and a half years after Indiana Pouch surgery have that hyrdronephrosis that you said you had in your post, it does not affect me in any way but they always say in the cat scan reports that I have it in both kidneys.
In Pooh's Grand Adventure, Christopher Robin says to Winnie the Pooh, - "you are smarter than you think, you are stronger than you seem and you are braver than you believe." This does not feel like a grand adventure by any means, maybe a medical adventure to say the least, but I have read your posts and found that you are each of these things, smarter, stronger and braver than you can ever believe, for me 4 years later, life again feels like a grand adventure and it will for you.

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12 years 4 months ago #12942 by fearandfight
Maria my problem was a little different then yours. My cancer was at the top of my bladder and also growing up my left ureter. When they did my Turbt they put in a J-Stent and this opened my kidney and I had my chemo b4 my surgery and it turned out to be the best decision I made. My surgeon who is Dr. Malkowicz up at the Univ of Penn in Phila said with my type of tumor and being contained to the bladder he had his best success record doing the chemo first. I wish you the best and I agree there where this should have no bearing on getting your chemo. I know we all worry too much but let the Dr. be the Dr. and try your best to think positive unless he tells you something you really need to worry about. Sounds like he has everything under control and you are in good hands. Good Luck, Joe ;)

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12 years 4 months ago #12940 by skypilot
Did they do an IVP? that will show how the kidney is working , mine was blocked showed left kidney not draining on my IVP. But they moved as fast as possible with RC and said kidney came back on line during surgery. Also the stints from left kidney was draing very nicly into the bag. I was very pleased to see that.

Hanging in there!

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12 years 4 months ago #12936 by lisaloo
Hi Marie
I am pleased you managed to get some reassurance and hope you slept soundly.This is one of the few reasons I am glad I live in the Uk and we have to wait for our doctor to give us our results.Its so easy to let the demons get out of the cave and a little knowledge is a frightening thing.
I hope your own doctor sets all your fears to rest and you breeze through chemo.
Love Lisa

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