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A quarter of the way there

12 years 4 months ago #12972 by Melodie
Lisa,

Sorry to hear about your loss...for us gals, losing our hair is a big deal! Even though we know it's coming, it tough for most of us to actually experience it. When I lost mine, I became instantly envious of almost every other woman I saw. In six months, mine has come back in, thicker and very soft...like a newborn baby, and very curly....was aways very straight...plus all my hair that grew back all over, also came in very soft...so there is a plus side to this experience. Melodie

Maria,

I did MVAC as Lisa, but I never lost my eye lashes or eye brows...so it sounds like we don't know how we will be affected until we get there. I was told by one gal I met during chemo that at some point she lost her fingernaiils but for me, the opposite was true, mine came in stronger...had always had weak nails prior to chemo.
What surprises await us during these medical adventures...we never know until we are in the middle of them. Melodie


Melodie, Indy Pouch, U.W.Medical Center, Seattle, Dr. Paul H. Lange & Jonathan L. Wright

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12 years 4 months ago #12902 by lisaloo
Hi Cynthia
The make up tips would be great I am sure others would find them useful.The chins very up and very straight forward thanks.

Lisa

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12 years 4 months ago #12865 by Cynthia
Lisa,

Have you checked into a the "Look good feel good" program? If not call your local American Cancer Society or your local cancer resourse center. If you can not find a program let me know and I will post some of the makeup tips I was thaught. The good news is that once you are out of chemo they come back very fast from my expericance.

Chin up and straight forward

Cynthia

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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12 years 4 months ago #12861 by lisaloo
Thanks for all your lovely positive messages.Thanks Cynthia I rang and asked about false eyelashes and they are not recommended.To be honest my eyes are pretty itchey so it probably wasnt the best idea.
Maria I am on MVAC and have a continent diversion which has been pretty trouble free.It would have been nice to have a neo bladder but wasnt an option.To be honest none of it has been bad as I thought its by no means a walk in the park but if I can keep cancer free it will be worth it and I just keep my mind set on that goal.
Lisa x

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12 years 4 months ago #12858 by Leigh
Dear Lisa,

Just to let you know that I have been thinking of you on this chemo journey and wish you all the very best during this time.

Keep up your courageous positive spirit and this will certainly see you through and will assist and help others who are to start this journey too.

Take good care chemo buddie....

Leigh

Leigh, 39
Dx July 2007
TURBT July 2007
RC/Neobladder ,Studer Pouch, September 2007
Erasmus Centrum Rotterdam
TNM Classification: pT4 N2 Mo
4 cycles aduvant chemo Gemzar & Cisplatinum

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12 years 4 months ago #12847 by Cynthia
Lisa,

I remember losing my eye lashes and eyebrows it was not a great day at all. I two gained wieght and that seemed so unfair. But the truth of the matter is I have seen research that shows that survial is higher in those who do not lose a lot of wieght so I took that to heart. The wieght came off after the chemo, not that I have ever been twiggy. The hair, eye lashes and eyebrows came back in fine soon after the chemo stopped. I was told not to wear false eyelashes because of the chance of infection from the glue you might ask your Doctor about it as I can not find any information on it when I google it. I remember the thing that really ripped me the most is I lost my eye brows and eye lashes along with my hair and still had to shave my legs. There was something just wrong about that.
Remember this is is just a journey to get to the other side of being well again and will soon be a memory.

Chin up and straight forward

Cynthia

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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