Great news and some bad news

16 years 3 months ago #12281 by mikeg
Replied by mikeg on topic Great news and some bad news
Hi Don,

That is great news. I remember when I found out my nodes were clear, it was a mixture of relief, release of tension, happiness, and a little self-pity thrown in. Sorry to hear there were complications, that seems to often be the case. I'm 8 weeks post surgery and life is starting to be very normal. My main problem is sleeping and nightime leaking and a little sciatica.

Your goals sound realistic and acheivable. Good luck.

Mike

Michael
Age 58
Stage T2-T3, muscle invasive
Married to Eileen
2 sons, ages 20 and 23

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16 years 3 months ago #12260 by Gene Beane
Replied by Gene Beane on topic Great news and some bad news
And Don, once again, never be afraid to call your Doctor and ask questions, we had several issues, they were all worth asking, don't try to be superman yet,, its way to early. And thats okay!!! Ginger

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16 years 3 months ago #12251 by Stephany
Replied by Stephany on topic Great news and some bad news
I may not be "there" but I can be here.....let me know if I can help again, Don. We have an appointment in February to try to remove my husband's drain again. Last time, in December, they could get a wire in, but no stent.

Just remember....it's your pain, and your body, and if there's something wrong, you need to get the kidney function test again. It's not an admission of weakness, it's a tribute to your strength of mind.

Stephany in Iowa

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16 years 3 months ago #12250 by skypilot
Replied by skypilot on topic Great news and some bad news
Thansk to all" stefeny I needed yo here that I have been feeling bad fior going back in hospital, I hope and pray taht the drain is not going to have to be permanite, Also no more pain for him. Don

Hanging in there!

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16 years 3 months ago #12243 by Stephany
Replied by Stephany on topic Great news and some bad news
And don't ignore it, or take pain meds, if the flank pain comes back.....it could be the same thing happening again. My husband ended up with what we hope is a temporary kidney drain because his closed up completely. The only way we knew was that he had that pain.

You don't want to wait until it becomes urgent. Don't worry about being there too early. It's for your own benefit!

Wish we had a Costco here. Or maybe not. I don't have much storage space.

Stephany in Iowa

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16 years 3 months ago #12230 by Gene Beane
Replied by Gene Beane on topic Great news and some bad news
Don,
Good news about the path report, ours was the same. I can't tell you enough that you have to take it easy. No matter how good of shape your in before surgery it is still major surgery and you have to respect that. Go slow, its hard to do but necessary. Ginger

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