What now...

16 years 3 months ago #12201 by momof4
Replied by momof4 on topic What now...
Holly,

I found a few warrior names for you...If you don't find something you like here check out this link:

whoosh.org/issue12/ruffel3.html

Ailith ... "Seasoned warrior."
Aloisia ... "Famous warrior." ...
Alvar ... "Elf or supernatural army, warrior." ...
Alvara ... "Elf warrior." ...
Atalanta ... she was defeated by a Greek warrior who used a ruse by dropping three golden apples he had obtained from the goddess Aphrodite ...
Bathilda ... "Woman warrior." ...
Bertilde ... "Bright warrior maiden."
Camilla ... Camilla was the name of a warrior maiden ... Camilla was a swift-running warrior maiden ...
Madison ... "Son of the mighty warrior." ...
Maeve ... name of the powerful and legendary warrior queen of pre-Christian Ireland (first century) ...
Maia ... Also (Maori) "brave warrior" ...
Quirina ... "Warrior." ...
Serilda ... "Armed warrior woman."

I hope you find some answers from others about your treatment. I do know that radiation to the shoulder had little or no side effects, and can be done in about 5 days, treatments are less than 5-10 min each......when it comes to radiation of the pelvis...it is generally alittle lower dosage over a longer period, as to protect the internal organs...
some side effects are of course fatigue, loose stools, and the like...

I wish you well,
Karen

Caregiver for my Wonderful Husband Angelo, who has Metastatic Bladder Cancer.

Life isn't about how to survive the storm, but how to dance in the rain.

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16 years 3 months ago #12199 by Cynthia
Replied by Cynthia on topic What now...
Holly,

I have sent out an email to a woman that you have a lot in common with and I hope you will hear from her soon. She has done a lot of research into what is the cutting edge during her journey and I hope she will share some of this with you.
As for a warrior's name you already have one "Holly" she has been fighting the good fight with dignity and hope for a while now.
Enjoy your furniture shopping. By the way when I was going through the battle field with chemo and trying to figure out where everything was going my mind was mush. I still have my days I wonder how many years I can claim chemo brain?

Chin up and straight forward


Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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16 years 3 months ago #12197 by mznoregrets
What now... was created by mznoregrets
Hi everyone,

I hope everyone's holidays were happy ones...ours were :)
As I posted we went to Mayo's just before Christmas for my 9 month check up. The oncologist was letting me off of the bonescan, but I had the chest CT, pelvic MRI, labs and a still film of the bone tumor in my shoulder. Here's what they found...
The shoulder tumor is almost 6 cm but they are sure it is benign.
The lung nodules seem to be stable and they didn't ask to biopsy.
The neo and kidneys seem to be fine.
They found a bone lesion on one of my hips in the MRI. They wanted to do a CT guided biopsy of it, but the CT couldn't pick it up yet as it is only 1 cm.

The plan has been to wait a few weeks - do a bonescan to see if there are any other lesions. Biopsy the lesion. If it's the only one we could do targetted radiation. If there are more he leaned towards systemic chemo. Seemed like an ok plan then, but I have been wondering...
I think I would like to get a full scan within the next week or two rather than giving this more time to become more intimidating. If it is the only one - then we can continue the plan, but if it isn't we could start treatment sooner which would be a bigger benefit to my survival. Right? I sure would like some thoughts here if you have something to share.

Today I get my 1st B12 shot :( My B12 has been as low as 126. I get confused alot and easily, can't remember lots of stupid stuff, and feel way off. My husband fears dementia is near and has begged and bribed me to get a shot. (He can't believe with all I went thru since DX that I fear what he calls "a little shot")This weekend I get a new coffee table and end tables!!

My shrinky dink lady wants me to have a warrior name for this fight, that it will help me mentally. Zena is overdone, and I need some suggestions.
Thank you, and God Bless, Holly

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