What now...

16 years 1 month ago #13341 by Cynthia
Replied by Cynthia on topic What now...
Non invasive is gaining usage. I like it better than superfical for the reasons you listed. Having seen both sides of the coin I can tell you that there is nothing superficial about dealing with non invasive blc.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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16 years 1 month ago #13337 by Julie
Replied by Julie on topic What now...
Lisa, I have been reading about Bladder cancer since 2001 and feel far from knowledgeable. Ask for clarification when a post is unclear. What is difficult is to sort out what is the information you need for your circumstances and what is irrelevant.

Volunteer Coordinator
ABLSC

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16 years 1 month ago #13336 by Patricia
Replied by Patricia on topic What now...
Hey don't feel bad...i didn't say i understood it...i just know what it is!!
:P

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16 years 1 month ago #13334 by mznoregrets
Replied by mznoregrets on topic What now...
Hi Lisa,

I do hope you are feeling better - the adjustment to chemo can be rough.
And please don't get yourself distressed if you feel knowledgable or not. Heaven knows I know very little, but I try to be generous of heart and to be understanding ( even if I don't really understand) LOL We just help each other down the road of recovery. Many times I feel like I ask stupid questions, but fortunately, the wonderful folks here ( like Pat and Zach - just to name 2 of many) are very sincere and helpful. Admittedly I do not post to threads I do not have anything to offer.
As far as my current status, my insurance has me hooked up with Northwestern hospital in Chicago rather than Mayo's. In early March I will be meeting my new dr's and getting the MR Urogram, etc. Sure hope they believe in treating mets immeadiately vs when they cause pain. Just know I am doing ok :)
Prayers to you and God Bless, Holly
PS Thanks for the B/C Ratio info folks :)

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16 years 1 month ago #13331 by Zachary
Replied by Zachary on topic What now...
Lisa, don't feel stupid about not knowing everything about this. I feel the same way when I read about some of the superficial treatments--I just don't know anything about them, and, just between you and me, I don't want to. I want to be knowledgeable, but only knowledgeable enough in some things to know that there are others more expert who can answer questions and concerns that I can't.

While I'm on the subject, I wish that there was a better term than "superficial." It sounds like it's synonymous with "minimal," when of course it's not.

"Standing on my Head"---my chemo journal
T3a Grade 4 N+M0
RC at USC/Norris June 23, 2006 by Dr. John Stein

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16 years 1 month ago #13325 by lisaloo
Replied by lisaloo on topic What now...
Hi Holly
So glad you have had what seems to be good news.Thanks for all your support and prayers over the last few months/weeks.I feel really stupid compared to Patricia and some of the others in that I only understand less than half of w hats being said in most of these posts.However I really hope the treatment and diet changes continue to make a difference and help your prognosis.
Lots of love Lisa x

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