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11 years 8 months ago #13341 by Cynthia
Non invasive is gaining usage. I like it better than superfical for the reasons you listed. Having seen both sides of the coin I can tell you that there is nothing superficial about dealing with non invasive blc.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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11 years 8 months ago #13337 by Julie
Lisa, I have been reading about Bladder cancer since 2001 and feel far from knowledgeable. Ask for clarification when a post is unclear. What is difficult is to sort out what is the information you need for your circumstances and what is irrelevant.

Volunteer Coordinator
ABLSC

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11 years 8 months ago #13336 by Patricia
Hey don't feel bad...i didn't say i understood it...i just know what it is!!
:P

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11 years 8 months ago #13334 by mznoregrets
Hi Lisa,

I do hope you are feeling better - the adjustment to chemo can be rough.
And please don't get yourself distressed if you feel knowledgable or not. Heaven knows I know very little, but I try to be generous of heart and to be understanding ( even if I don't really understand) LOL We just help each other down the road of recovery. Many times I feel like I ask stupid questions, but fortunately, the wonderful folks here ( like Pat and Zach - just to name 2 of many) are very sincere and helpful. Admittedly I do not post to threads I do not have anything to offer.
As far as my current status, my insurance has me hooked up with Northwestern hospital in Chicago rather than Mayo's. In early March I will be meeting my new dr's and getting the MR Urogram, etc. Sure hope they believe in treating mets immeadiately vs when they cause pain. Just know I am doing ok :)
Prayers to you and God Bless, Holly
PS Thanks for the B/C Ratio info folks :)

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11 years 8 months ago #13331 by Zachary
Lisa, don't feel stupid about not knowing everything about this. I feel the same way when I read about some of the superficial treatments--I just don't know anything about them, and, just between you and me, I don't want to. I want to be knowledgeable, but only knowledgeable enough in some things to know that there are others more expert who can answer questions and concerns that I can't.

While I'm on the subject, I wish that there was a better term than "superficial." It sounds like it's synonymous with "minimal," when of course it's not.

"Standing on my Head"---my chemo journal
T3a Grade 4 N+M0
RC at USC/Norris June 23, 2006 by Dr. John Stein

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11 years 8 months ago #13325 by lisaloo
Hi Holly
So glad you have had what seems to be good news.Thanks for all your support and prayers over the last few months/weeks.I feel really stupid compared to Patricia and some of the others in that I only understand less than half of w hats being said in most of these posts.However I really hope the treatment and diet changes continue to make a difference and help your prognosis.
Lots of love Lisa x

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