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I am Going for the RC,

11 years 10 months ago #11534 by skypilot
Thanks Joe. What it will be, it will be. Sounds like the indiana pouch is a good deal for you. I have concidered it for me but I like a chalenge of making the neo work. The main thing is get rid of the cancer for good. Don

Hanging in there!

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11 years 10 months ago #11531 by fearandfight
No Don everything looked good for the Neobladder from the scans etc but it's when they open you up this is when things can change as in my case. Now the surgeon has a birds eye view. There were cancer cells in and around my uretha and this usually makes it a no go for a Neobladder. So my surgeon went on to Plan B which was the Indiana Pouch. At first I was a little disappointed but this baby works like a charm and has never leaked once knock on wood. No mess, no fuss, easy to use so all and all I have no complaints. Damn with this disease you gotta do what you gotta do and things usually work out just fine. Well good luck with your surgery Don you get a little of that morphine you'll be flying again lol and I'm sure all will go well. Take Care my Friend, Joe ;)

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11 years 10 months ago #11519 by skypilot
Thanks very informative. Don

Hanging in there!

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11 years 10 months ago #11513 by mikeg
I had my catheter taken out of my neo-bladder 2 weeks ago at Johns Hopkins. The Catheter has 2 stents attached/tied at the end and when they remove the catheter the stents come out as well. The whole thing is maybe 2-5 feet long...it's amazing how much comes out. It was annoying but over quickly. I was concerned about this as well, but it came out all at the same time without any special technique. I didn't exam what came out all that closely, but I could see that they were attached.

Mike

Michael
Age 58
Stage T2-T3, muscle invasive
Married to Eileen
2 sons, ages 20 and 23

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11 years 10 months ago #11492 by Maria
Hi Don
I found an interesting article that you and others, may find very useful reading, see end of page 6:
https://www.virginiamason.org/home/workfiles/urology/UroNews_2007.pdf


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11 years 10 months ago #11488 by Gene Beane
Don, We'll be looking for your updates, sounds like a good team of doctors you are working with. You'll do great, you have a good attitude. Give us a call from the hospital to let us know how you are doing!!!!YOU GOT MY CELL, Gene

Hospital Cleveland Clinic r/c Sept.14,2007
Surgeon. Dr Stephen Campbell and Gill
Gene Beane..66 Ford Motor Company
Engineer, retired Vietnam Vet

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