Urachal Cancer

16 years 3 months ago #11967 by mznoregrets
Replied by mznoregrets on topic Urachal Cancer
Hi Betsy,

My understanding is that adenocarcinoma can happen in any organ with a lining, including the umbilicus. The cancer of the umbilicus is what I found to be rare.
[www3.interscience.wiley.com/cgi-bin/abstract/116330045/ABSTRACT?CRETRY=1&SRETRY=0/url]
That is the Mayos info I have found.
Anyhoo, Have a good day, God Bless, Holly

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16 years 3 months ago #11964 by Betsy Mae
Replied by Betsy Mae on topic Urachal Cancer
Hi Holly,
Interesting that you have come to the same conclusion as me re research into urachal cancer. On diagnosis I asked the consultant if it was rare and he said "not really". Do they know more than they are letting on?
have a good Christmas!
Betsy Mae

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16 years 3 months ago #11938 by mznoregrets
Replied by mznoregrets on topic Urachal Cancer
Hi Betsy,

Well, there is not much info anywhere on urachal cancer. That which I was able to find was quite dismal...it has normally been dx'd advanced in stage, also it doen't respond well to chemo. I had a friend who did the bladder sparing, but within 6 months she went to stage 4 and it advanced on her rapidly. I believe there have only been about 200 cases dx'd. MD Anderson has a trial going on tho.
God Bless, Holly

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16 years 3 months ago #11933 by Betsy Mae
Replied by Betsy Mae on topic Urachal Cancer
Hi Glyn and Holly,
Only just found this thread. My tumour was a grade T3 urachal adenocarcinoma. Luckily histology reports showed that the whole tumour was removed during surgery and that there was no lymph node involvement. I have not been offered any chemo as the lymph nodes were ok. I understand that I will have regular MRI scans over the next 5 years to check that nothing untoward is going on. I have found it difficult to find much evidence of outcomes for this cancer on the internet.

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16 years 3 months ago #11054 by gjforema
Replied by gjforema on topic Urachal Cancer
Hi,

From my understanding of adenocarcinoma it only accounts for about 1-2% of all bladder cancers. Information is hard to find on the net. There is a thin line of tissue that connects the belly button (umbilicus) to the dome of the bladder. This I believe is what they call the urachal remnant. AC can occur any where in this line of tissue from BB to bladder dome. Urachal is a broad term meaning any involvement is this tissue. In my case the AC started inside the bladder from tissue (urachal tissue) left behind during fetal developement. If the cancer starts outside of the bladder it is usually referred to as urachal. If it starts from inside it is sometimes referred to as in my case AC in situ of the bladder.
Hope I didn't confuse you. But if you have any questions feel free to ask.

Glyn

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16 years 3 months ago #11052 by mznoregrets
Urachal Cancer was created by mznoregrets
Hi everyone,

Just a short bit ago I read a post of someone dealing with adenocarcinoma. I should have posted right away, but I didn't. :-[ Now I can't find you lol.
I wanted to ask if the adenocarcinoma is considered urachal (belly button) cancer. You can see my dx under my post...Hope to hear from you.
God Bless, Holly

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