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Urachal Cancer

11 years 3 months ago #24357 by mmc
You misunderstood what I was trying to say. What I said was the my belly button now being flat is not serious (like cancer is).

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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11 years 3 months ago #24356 by Betsy Mae
Err? I think that urachal cancer IS pretty serious!

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11 years 3 months ago #24353 by mmc
I never knew about the tissue connecting the belly button. It's certainly not serious like having having belly button cancer, but maybe that explains why my belly button pretty much went away after my cystectomy. Since it was no longer attached to the top of the bladder, it pretty much went flat. A part of my scar looks more like a belly button than my real belly button now.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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11 years 3 months ago #24301 by Patricia
Goeff...tell me more. I know this is a drug used for colon cancer but have not heard of it for urachal cancer. Is this standard or in trials in the UK?
Thanks,,,,,, Pat

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11 years 3 months ago #24300 by Betsy Mae
Hi Geoff,

I think I have seen your posts on other sites (Old Dipex for one)and possibly exchanged emails in the past. I find this site invaluable.

Hope you are well. Unfortunately I now have breast cancer and am undergoing chemotherapy. Isn't life a b****?!

Betsy Mae

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11 years 3 months ago #24298 by geoff
Hi Holly

I am in England, was diagnosed with Urachal cancer in September 2007. I was treated with FOLFOX (February to May 2008) and so far am doing well with no active cancer at present.

Geoff

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