Last month I had a CT scan and a cystoscopy after finding blood in my urine. Apparently the CT scan was negative as well as the cystoscopy, but a Urovysion test of urine in my bladder showed transitional cancer cells. Now the Urologist recommeds a cystoscopy under anaesthesia while he taps the kidneys for urine samples and does what he calls "random biopsies of the bladder wall. I am as apprehensive about this procedure as I am about what he will find. It seems to me that if you have cancer cells present in the urine and you cut into the bladder for random biopses, what's the chance of making the situation even worse?
I have tried calling leading Cancer centers for help. The most common response I get is that I have to have a diagnosis first for them to give a second opinion. But I feel the step I'm on is an extremely important diagnostic procedure and I want to know of a world class diagnostition to work on me.
Have any of you found yourself in a similar situation. How did you handle it. Does anyone know of a great diagnostion. I'm in Massachusetts but willing to travel.
Thank you for any help you can give. I'm scared to death as you well know
