Melodie,
Welcome and sorry to meet you here. Reading your post I can so relate to the shock and disbelief you are going thru. There are many people here who are compassionate, knowledgeable and supportive of all of us going thru this experience.
I was just dx'd in January, got a neobladder in March, and started chemo in last week. The details and trials i been thru are in my posts if you are interested. My cancer was in the dome and my RC and neobladder was done in Mayo's Rochester - St Mary's Hosp. by Dr Micheal Blute. I am happy with my neobladder. I am very happy with my neobladder, actually
Considering the 2 c diff infections and the chemo diruretics I am doing - the new bladder is pretty fine lol. Just the last few days I am dry again day and night and voiding about every 3 hours. I have faith the neobladder and I will be great friends once I can focus on training it some.
If I can be of any help to you - please let me know. Mayo's did my surgery 8 days after they first met me - time is well respected there anyways.
Bless you, Holly