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Jan. 06/Liver Transplant--March 07/Bladder Cancer

11 years 6 months ago #5899 by aligator
Hello all,
Just got back from the doctors with the news of carcinoma in situ of the bladder, the results of the May 23 cystoscopy and TURB procedure. The doctor reccomends that he get the BCG treatment BUT....because of the transplant it may not be possible. Might be able to do the Mitomycin treatment.

It will be up to the transplant team what treatment will be done.

Thanks for all of the information that I did receive from all of you.

I still continue to read and I do learn a lot from my readings here at the cafe.

Ali

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11 years 7 months ago #5141 by Patricia
another roadblock...is he on warfarin or Plavix? Just wondering. Plavix stays in the system 7 days......the coumadin(warfarin) about 3 ..much shorter acting. So am wondering about the l0 day window.........Just thinking out loud........Pat

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11 years 7 months ago #5137 by aligator
Just a quick up date....

Thanks Pat, Wendy and Rosemary! After speaking with you we called the person in charge of scheduling the cystoscopies and had the procedure moved up two full weeks....to May 23. There was a possibility that it could have been done next week, but because he has to take a blood thinner he can not have it done then. (He has to be blood thinner free for at least ten days.) So it is scheduled for the next possible date.

The scheduler completly understood our concern for the procedure to be completed sooner than later...and I want to thank you all again for guidance.

My best,
Ali

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11 years 7 months ago #5108 by Patricia
Than my Internist lied to me about the fatty part.......who do you trust? Pat

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11 years 7 months ago #5105 by aligator
Pat,

Thanks for the info....I will check the NCI out.

No, the hepatologist did not diagnose cancer...he just told us what the findings were in the records that he had available from the cytology test from the 16 of March. March 16 was the IVP also. The Monday after we returned from the transplant hospital, his urologist called to apologize to us that he was not the one to say the possibility of cancer to us...he wanted to tell us face to face the findings of the cytology test and the results of the IVP.

Fatty Liver is not something that everyone gets. Fatty liver disease - is becoming increasingly common. Left untreated, it can lead to inflammation and scarring. In a liver transplant patient a diagnosis of a fatty liver has to be monitored very closely as it could lead to a need for another transplant. Having Hepatitis C is another concern. That is why we HAD to modify everything that we possibly can to address the fatty liver issue.

Yes, getting old is not what I always thought it would be.

Thanks so much.

Ali


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11 years 7 months ago #5103 by Patricia
Ali..if you go to the National Cancer Institute page they have a link to clinical trials and the one Wendy is talking about is there and the criteria for participating.
Am i understanding that the hepatologist diagnosed the cancer?
We all get fat around our liver at some point....they found some on my last CT...asked why....age!!..Oh goody another perk of getting old!
Pat

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