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New to forums and have bladder cancer

3 months 4 weeks ago #59002 by bjw4253
Thank you so much.I am in north America. My doctor told me he is going to call all over to try and get it .I appreciate the info

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3 months 4 weeks ago #59001 by Alan
bjw4253,

Welcome. Yes, BCG is usually used after 1 or 2 recurrences of low grade tumors, so it is time to get it. From what I understand the shortage is decreasing so I would certainly press to get it. It might be in more short supply in other countries so if you are outside of North America I am not aware of how that might affect you. Some other agents such as Mitomycin etc are used absent BCG as a bladder wash or local instillation although they are not quite as effective as BCG..

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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3 months 4 weeks ago #58997 by bjw4253
Hello I was diagnosed with bladder cancer October of 2018. I am now going to have my 4th operation. Every 3 months when ever I get scoped every 3 months I end up having more tumors. My doctor is trying to get me the BCG treatment but says its been over a year since he has been able to get it. I am lucky so far because it is a low grade cancer.I have been on the keto diet since I was diagnosed.Also taking termeric and iodine .
He says until he can get the BCG he will keep cutting them out.
Any way just wanted to say hello and it is pretty cool to find some where that others may have an issue.
any feedback is welcome
and Bless you all

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