New to forums and have bladder cancer

3 years 2 months ago #60372 by bjw4253
Replied by bjw4253 on topic New to forums and have bladder cancer
Well great news.My doctor got the bcg 1/2 treatment and for the first time after the treatment no tumors were found.Now to deal with prostrate cancer but I am thrilled.
Good news gives me hope.
Thanks for all the support

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4 years 1 month ago #59002 by bjw4253
Replied by bjw4253 on topic New to forums and have bladder cancer
Thank you so much.I am in north America. My doctor told me he is going to call all over to try and get it .I appreciate the info

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4 years 1 month ago #59001 by Alan
Replied by Alan on topic New to forums and have bladder cancer
bjw4253,

Welcome. Yes, BCG is usually used after 1 or 2 recurrences of low grade tumors, so it is time to get it. From what I understand the shortage is decreasing so I would certainly press to get it. It might be in more short supply in other countries so if you are outside of North America I am not aware of how that might affect you. Some other agents such as Mitomycin etc are used absent BCG as a bladder wash or local instillation although they are not quite as effective as BCG..

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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4 years 1 month ago #58997 by bjw4253
New to forums and have bladder cancer was created by bjw4253
Hello I was diagnosed with bladder cancer October of 2018. I am now going to have my 4th operation. Every 3 months when ever I get scoped every 3 months I end up having more tumors. My doctor is trying to get me the BCG treatment but says its been over a year since he has been able to get it. I am lucky so far because it is a low grade cancer.I have been on the keto diet since I was diagnosed.Also taking termeric and iodine .
He says until he can get the BCG he will keep cutting them out.
Any way just wanted to say hello and it is pretty cool to find some where that others may have an issue.
any feedback is welcome
and Bless you all

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