Hi downeaster,
Originally I didn't have any pain just bleeding when urinating. Now after my treatment (2 turbt and now 21 BCG) things have never been the same - still some bladder pain and I don't think my prostate will ever be the same. Especially after my last 3 BCG it was dramatically worse. However, I can live with that as it is more worrisome than painful. My treatment was temporarily postponed because I was diagnosed with Non-Hodgkin's Lymphoma and I could not get my BCG maintenance because my Oncologist told my Urologist that I would need to let my immune system get back to semi-normal first. After having Chemo and radiation for the NHL, it worked out pretty well because at the time there was a BCG shortage so by the time it became available I was kind of back to normal (or at least my new normal).
I always worry and dread before my Cysto and just hope things are OK. I am so tired of the Doctor treadmill but just try to "keep hope alive" and cherish every day now.
Hoping 2020 will be a positive year for all of us......F*** Cancer!!
08/16 Blood in Urine;09/16 CT Scan, RPG, Cysto;10/16 TURBT;12/08 BL TURBT;01/17 6X BCG;05/17 NED, 3X BCG, 9/17 NED, 3X BCG,1/18 NED, 3X BCG,7/18 NED, 3X BCG