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BCG and waiting

1 week 3 days ago #59260 by DonaldK

I don't know how close you and you brother are, but I know family support is so important to me. I would not be making it through all this if it weren't for my brothers.

I am in my third round of treatments and I too have pain - I had posted some time ago about this.

We have postponed the final course for this round another week to see if my bladder calms down(severe spasms) - doc said all we might get in this time is two treatments.

My fear is that if I can't get all three treatments in then I will not be able to continue in the research study (which is covering the cost of the BCG treatment).

Please all - take care and stay safe through this time of difficulty.

I appreciate all the support I have received from this group.


Hi Grade T1 CIS

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1 week 3 days ago - 1 week 3 days ago #59259 by Alan
Hey, focus on both of you are alive beating this. It is ALL good. Lot's of people with worse problems especially now. All things I know you have already processed. Glad you got to the U of Iowa.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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1 week 3 days ago #59256 by sara.anne
Greg, you probably have read this, but will repeat it anyway. The side effects from BCG do increase as the treatments go on. This indicates that it is working to kick up the immune system.

Good job!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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1 week 4 days ago #59255 by GREGIL
Yesterday I had my 4th. BCG treatment. They seem to get slightly more uncomfortable with each session. Simply uncomfortable is pretty good compared to what I understand about alternate treatments. The U of Iowa clinic I went to was mostly deserted. Very few cars in the parking ramp of a 5 story building. No one in the waiting room besides me. With Gods help we will all survive this latest crisis together. Thank you all for you encouragement.

As a side note, I wanted to share a story. My brother had bladder cancer 3 years ago. He had to have his bladder removed, and has worn a ostomy bag ever since. I have not told him about my situation. He lives in another state, across the country, and we only see each other every few years. I almost hate to tell him of my success knowing how his own situation worked out. I feel a little guilty I guess. I can't help feeling if he had found the right help, at the right time, his cancer could have been eradicated also. I guess I will wait until my journey is over and done, to be sure of the results and decide then. Maybe it's best if he never knows. Anyway. Thanks for letting me talk. Greg

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1 month 1 day ago - 1 month 1 day ago #59174 by Shacky73
You’re in good hands!

My first 2 BCG’s were easy. By number 4 it was more painful but nothing I can’t handle. Number 5 on Thursday!

It’s all worth it!!!

T1 Grade 3 with CIS

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1 month 2 days ago #59173 by Regor

GREGIL wrote: Had my first BCG treatment today. Piece of cake. If they all go this smooth, I'll be happy. Learned something new today. As I mentioned earlier, University of Iowa is a dedicated National Cancer Institute. Seems I have even lore than that going for me. My Dr. just happens to be Dr. Michael O'Donnell.

Wow, nice connection you have there ;)

TURBT Jan 2019; Diag: CIS
Induction BCG (Mar 19) /Maint BCG (Aug 19)
TURBT Nov 2019; Diag: CIS
Repeat Induction BCG - Jan 2020 Complete

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