Sorry to hear about your issues. But do not worry about the cancer "getting outside the bladder." During the procedure to cut out the papillary tumor the doctor made a small cut deeper than he intended...but no cancer cells "escaped." That is not how cancer can spread. It spreads by growing into the deeper layers and then into the lymph nodes.
As your doctor has probably told you, CIS is always high grade and requires additional treatment. The usual treatment is a form of immunotherapy called BCG (sometimes a different substance is used) which stimulates the immune system to reject the cancer cells. BCG is very effective for CIS. I had the very same diagnosis you have over 11 years ago, had BCG and have had no sign of cancer since. You will do as well!!
Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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