Lee lee, I had my RC done at the University Hospital of Chicago by Dr. Gary Steinberg, and have done well with it since 2006. I had done a bit of research and with the problems woman sometimes have with the Neobladder I felt that the Indiana was my first choice. In my next post to you I will get further into this but due to the radiation to my bladder I could not find anyone in Boston that would do anything but an external appliance, I live in Western MA so Chicago was a choice for a reason. I needed someone who had a LOT of experience and Dr. Steinberg also had experience in urinary reconstruction following radiation.
No matter what type of diversion you have there will be a learning curve. Both the Neo and the Indiana have to be trained. With the external appliance it finding the right bag and adhesive and the such, but we can talk ,more about that when you get there. But that is just the beginning what is it like after the training and the healing? For me the Indiana has not changed my life as much as one would think. My stoma is in my navel so has not really affected my body image and my love life is fine. Since I have had it I have hiked, snorkeled, swam and done everything I would wish to. By the way I am typing this from the road I am returning on a solo road trip from MA to FL and will have my 63rd birthday in a few weeks.
As for how often I catheritize it depends on how much liquid I drink just like before. It tends to be about every four hours and at night I set my cell phone to wake me up after four hours. I have a collection of makeup bags that I carry in my purse with my supplies. Other than making sure I have supplies it really isn’t a big deal. It has never hurt to cath and to tell you the truth in public restrooms it is nice to not have to sit down, who knew? (men have known this for ages, they could have shared.)
I still have a few hundred mile to go before I hit home so I have to run. I am sure you have more questions so just let me know and when I get home this evening I will give you my experience with the bladder sparing protocol.