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82 yr old Female w/Dementia-“I’m fine”

4 months 5 days ago #57586 by sara.anne
We will hope that this lack of urgency does mean good news! Please let us know how this visit to the doctor goes.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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4 months 5 days ago #57584 by Alan
You are making progress! It is always heart warming when people are willing to go the extra mile stepping up as one never knows when it will be us needing help next.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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4 months 6 days ago #57583 by MomaT
Thank you Sara Ann. I have been asked to accompany my friends to the follow up appointment at the end of the month. The doctor’s office called & said the doctor has the results & will review them at the end of the month in person only. We are hoping this could be good news. She is hoping that if it is cancer they would have her in the office right away. That was not the case with a family member of mine.

This is a wonderful support group with great information and of course support.

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4 months 1 week ago #57565 by sara.anne
That is a very sad situation. Unfortunately, you do not have "standing" to do much directly. You could find the senior abuse or well-being office in your state or county and bring the situation to their attention. If indeed she has dementia they should be able to step in and get her the care she needs.

Thank you for being an advocate for your neighbor/friend.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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4 months 1 week ago - 4 months 1 week ago #57564 by Alan
Welcome and directly to your question. I have never heard nor read about any predisposition to bladder cancer with dementia or any other cancer. These are two separate issues and body functions going on. Either way you have my concerns and care as I know several friends and aquaintenances that fight the different forms of dementia. The caregiver seems to have the worst part of this! All I can say is remember how they were before they got this affliction and it is about the only way to keep sanity and perspective on things. Feel free to ask as you go being aware we are all volunteers, not doctors.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
The following user(s) said Thank You: MomaT

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4 months 1 week ago #57563 by MomaT
My neighbor & friend has Dementia-waiting on biopsy results to see what stages she has. As soon as we have results, I will be able to help more. DO DEMENTIA PATIENTS HAVE A PREDISPOSITION TO BLADDER CANCER?

The Dr stated after procedure she was shocked to find cancer & not Hunners lesions.

We are beyond frustrated with her not getting good care, repeatedly saying “I am just wonderful, fine, God will take care of me.” Both of them are not getting good healthcare & their youngest child doesn’t care to help-just lies to them. One of the daughter’s visited & made a specialist appointment thank God husband & youngest didn’t let her cancel it.

(Po’ gal’s religiousness stops her from sharing symptoms-she thinks her husband is a nonbeliever, so she wants him to see Gods Power.) This is of course her dementia scrabbling her logic. And has caused daughter’s to be at odds.

(The husband is in denial about her mental capacity or lies. Her children live miles away w/the exception of youngest child; who only comes around for subtle handouts. These folks don’t see what has been happening. And the daughter’s are being lied to-along w/busy careers & raising grandkids.)

She doesn’t really eat well, hates water which I found is typically not good when doctors keep treating UTI after UTI, Has been hospitalized for dehydration in the past. Has horrible pains, passes clots, but won’t tell husband doesn’t want to wake him, so I am assuming the Doctor has never heard of it.

I feel she needs to be in care facility. I have tried to help.

I am very sad for my friends.

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