8 months 3 weeks ago - 8 months 3 weeks ago#57484by Alan
If there is a norm or average from what I have read 6 weeks is about it. I have seen 12 week waits. There could be reasons for 12 weeks. The TURB could have been more extensive in the burning and digging. Your Dad's age. The current shortage of BCG.
Two quick observations. Tumors do not grow super fast so another 6 weeks is probably not a major problem. At the same time you may want to call the office and either ask for an accelerated induction schedule or an explanation 6 vs 12. I know this is not exactly what you want to hear but, wanted to put some perspective on it.
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
Thank you for your answer. I would be happy with starting in six weeks, but they scheduled it to start July 17th, and he had his surgery to remove one tumor two weeks ago. I just wonder if anyone else had to wait three months to start.
My dad, who just turned 86, had TURBT two weeks ago. The doctor called him Friday to tell him he would need BCG treatment for six weeks. I don't have a pathology report, but I know it was a high-grade papillary tumor. When he called to make his appointments, they told him he would start July 17th! That seems way to long to wait to start the treatments - I am concerned he would have more cancer by then, and they aren't even planning to check before starting. Since I am new to researching this, I am hoping someone can let me know if waiting three months to start is ever normal. The most I read while researching is three to six weeks. They offered he could call back to see if there is a cancellation - who would cancel cancer treatment?
My dad has two extremely large diverticuli, making his bladder hold over twice the volume of a normal bladder. I am not sure how they even did staging as his tumor was located in a diverticuli. I am happy to say they did get clean margins. I wonder why the set up treatment, but didn't offer him a chance to talk to his doctor about the amount of BCG used and if that would be adjusted for him. Also, my dad does self-catheterization due to prostate issues, and urine backing up (causes his kidney's to be inflamed). He needs to do this six times a day. It would be nice if they wanted to talk to him about how he handles this before starting. I am sure the doctor won't be there for his first treatment.
Again, thank you for reading this, and I look forward to some answers about when others started there BCG . I live in Michigan, and so does he, but he saw a urologist in St. Louis while visiting my sister. I would be happy to have him stay here and go to the University of Michigan for treatment, but don't know how easy it would be to get him started here.