BCG postponed

4 years 11 months ago #57444 by Jack R
Replied by Jack R on topic BCG postponed
mw10028

Your delay and progress at 5 weeks does not seem to be out of line with what many of us experience. None of us like any sort of delay in planned treatment - we want to deal with our BC as soon as possible.

Cystoscopy may well become a necessary part of resolving the bleed if it continues - it was for me, when one biopsy spot would scab, then alternate between throwing clots and bleeding. Cystoscopy showed the bleed, and I was back in for a brief OP surgery to cauterize the bleed. I have learned that "blood hurts". If you are bleeding, expect urination to hurt - even if it is microscopic blood there may feel pain. Each of us is different.

I doubt that a cystoscopy would delay healing. The larger caliber scopes used at TURBT seem to have been the cause of my aches and pains.

You might check with your doc and see if s/he thinks that Pyridium would help with urinary pain, and is appropriate for you. Hang in there - give it some more time - it does get better.

Best,
Jack

6/2015 HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
1/2020 CIS is back
Tried Keytruda, stopped by side effects
Workin on a new plan for 2021

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4 years 11 months ago #57442 by mw10028
BCG postponed was created by mw10028
Hi everyone, I am a 43 year old male with no risk factors diagnosed with CIS last month. Had a TURBT 5 weeks ago. Was supposed to start induction BCG this week but it has been postponed because I am still seeing a few drops of pink urine at the end of my stream. Tonight I passed another small clot. I still have some pain at the end of urination although this does seem to be slowly improving. Having to wait to start treatment is making me very anxious and I am wondering what I need to do to get the bleeding to stop finally. Urologist told me to take it easy and offered another cystoscopy but I feel like that will only lengthen the healing process and delay BCG even more. Has anyone experienced a prolonged recovery after TURBT like me and if so, when did the bleeding finally stop?

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