University of Rochester medical Center

5 years 3 weeks ago #57186 by Ange
Replied by Ange on topic University of Rochester medical Center
Hello. You must not be far from me. I am about a hour and half from univ of Rochester. I have jus had surgery las week in Cleveland clinic. They are wonderful, but wondering if I need chemo treatments if I could go closer like the u if of Rochester, so as not to have T travel 5 hours to get there. But I will if that's my BEs alternative. Cleveland clinic is so wonderful, I highly suggest it.

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5 years 4 weeks ago - 5 years 4 weeks ago #57179 by sara.anne
Replied by sara.anne on topic University of Rochester medical Center
I do not personally have any knowledge of the University of Rochester, but their list of faculty has a number who appear very qualified in treating bladder cancer. I would certainly be relatively confident in a medical school practice since they should be familiar with current treatment standards.

Some urologists use mitomycin and some don't. It is NOT a critical part of treatment. Mine didn't and I consider his training and background excellent.

Blue light cystoscopy is the latest "buzz word" in urology. Some studies say that it find more cancer than white light and some say there is no difference and some say that blue light finds more "false positives" (showing cancer when there really is none.) Since it is an expensive service to set up initially, hospitals that have it will, of course, proclaim its superiority. I am always more impressed with the experience and reputation of the urologist ( or any other doctor) than I am with the purchased bells and whistles. My own opinion...others may differ.

It all comes down to your comfort level. If you do not have confidence in your doctor, go elsewhere. But be careful of following "Dr. Internet."

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
The following user(s) said Thank You: Jjbrown

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5 years 4 weeks ago #57178 by Jjbrown
Has anyone heard or personally know if the University of Rochester medical center is a good place to transfer my care to? They are the only hospital near me (an hour away) that offers blue light. I am obviously willing to drive the hour for each appointment if I know the care is good. My urologist now seems good and has good reviews however he did not use the Mitomycin after my turbt and that concerned me. When I asked him why he said that all the doctors in the practice ( about 25) have stopped using it because it calcifies the bladder and can cause other problems. He said they use gemcitibine if and when they know they are dealing with cancer so I presume that would be after a second turbt, not after the first because they would need to see the pathology report. Has anyone heard of this? I would like to trust my surgeon because he comes highly recommended in my area but it seems alot of posts on this forum, docs are still using mitomycin. I have to question then, why not my urology practice? Also, they do not have access to blue light. I was diagnosed as TaG1 so am I jumping the gun to transfer care with a low grade diagnosis? Any insight is greatly appreciated! Thank you

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