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Both Low grade AND High grade NMIBC

1 year 4 months ago #56597 by JDRVNJ
Hello all,
I am 54 year old man in very good health.(Former smoker) In Oct. 2018 awoke with blood in urine, saw GP who directed me to Urologist who performed Cystoscopy Dec. 7th. He detected papillary carcinoma and recommended TURBT.
After discussing with my wife, I arranged to see BC specialist at MSKCC in NYC on 12/19, he performed another Cysto to confirm, and then performed TURBT on Jan 2 2019.
Pathology came back Stage 0a non-invasive urothelial carcinoma with predominantly low grade but SOME high grade cells detected.
I am having a 2nd TURBT on Jan 29, and 3 -4 weeks later will begin BCG treatments once a week for 6 weeks.

My questions are:
--It's been 9 days since TURBT, and other than the first 24 hours of burning etc. after surgery had no discomfort at all until yesterday. Now have constant urge to go, and a slight tingle/burn not really painful, but noticeable. Urine is totally clear. Does that sound normal?
-- BCG side effects - what should I be expecting? I sit at a desk for 9 hours a day.

Thank you in advance for any feedback. Happy New Year

DX 12/2018 NMIBC T0a both High AND Low grade
TURBT 1/2/19 and 1/29/19
MMC begins 2/22/19

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