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received diagnosis yesterday

4 days 17 hours ago #56405 by embry1123
Thank you, Sarah Anne, for the advice. The oncologist that I will be seeing, is Dr. Jue Wang. He has written a brief paper on this type of cancer, so I’ll see what he has to say. We were expecting, per the surgeon, for the pathology to determine the stage and grade of the tumor. Neither was given in the report, although I assume that the type of cancer it is, kind of gives the grade. I’ll post back after seeing Dr. Wang tomorrow afternoon.
Thanks again.

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1 week 16 hours ago #56374 by sara.anne
This is, as you have discovered, not a common bladder cancer. You would do well to be seen at a place that specializes in out-of-the-ordinary cases. I would truly recommend that you contact Dr. Agrawal at the National Cancer Institute. He would be able to give you suggestions on where you might need to go

Piyush K. Agarwal, M.D.
Center for Cancer Research
National Cancer Institute
Building 10 - Hatfield CRC, Room 2-5952
Bethesda, MD 20892-1210
Ph: 301-496-6353
This email address is being protected from spambots. You need JavaScript enabled to view it.

Dr. Agarwal is very easy to talk with and would be glad to help if he can.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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1 week 22 hours ago #56372 by embry1123
So, yesterday I was told that I have Primary signet ring cell adenocarcinoma of the bladder. I don't see the Oncologist until Monday afternoon. After quite a lot of research, this doesn't look too promising and is of course not what we were hoping for. There doesn't seem to be an awful lot of information available on this type of bladder cancer. Can anyone shed any light on it for me?
Thank you.

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