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, Now 13 months later not so good but good

1 month 4 days ago #58777 by Alan
Boat,

Sorry for the new info on your recurrence. You have a plan and I like your attack! Add as you go as we all learn from each other.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
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1 month 4 days ago #58776 by Boat
13 months later, and after 12 courses of BCG and 3 TURBT's I went from Ta papillary tumor w/CIS to only one but worse T1. Rather than chance it any further I'm going in University of Washington for RC and neobladder.
All scans show no cancer, and with it being confined to my bladder as T1, it is time for the RC.
So, initially it was bad news, but with modern medicine and surgical techniques I see some great good in al off this . Long term survival rate when at this stage with an RC is well over 85%.
I like that.

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1 year 1 month ago #56309 by Alan
You will be one of the majority that will beat this!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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1 year 1 month ago - 1 year 1 month ago #56308 by Boat
Thank you, Alan. I truly appreciate reading your words.
I am I guess, a realist and probably to a fault. In my mind I'm already researching bladder replacement procedures.
I'd rather have a pleasant surprise than a big let down. Probably not the thing to do as the angst is terrible.
My urologist came in after the TURBT and shared the photos with me. He said he took several biopsies.
He said he has a patient that had much worse looking the mine who is living his 12th year after diagnosis.
Yes, it all depends on the pathology coming up next week. I have that meeting on Wednesday.
Thank you again.

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1 year 1 month ago - 1 year 1 month ago #56306 by Alan
Welcome Boat,

I too have read all kinds of studies and articles looking for the "facts". I have learned almost every writer of any subject will have actual or subconscious reasons for every view. Not to say many aren’t very good (maybe because I hear or read what I want to hear also).

To distill what I have gleaned is the majority of people will beat this disease. Generally, CIS is more serious than papillary tumors but both can kill. CIS is always considered high grade. Also, I ahve learned to live one day at a time...that doesn't mean one doesn't plan it just means doing the best we can with what presents itself right now. How we deal with it.

Until the pathology report is done you won't really know much. At that time you will have a game plan on beating this. Keep posting as someone will have been there and done that help.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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1 year 1 month ago - 1 year 1 month ago #56305 by Boat
Three weeks ago, Cystoscopy showed A typical Carcinoma in situ (CIS), and a papillary tumor. Today is TURBT. I've been reading CIS can be very aggressive.
At this point I guess I just wait to see what the pathology report says and go from there.
I am an otherwise 64 yer old, never smoked ever, but a 45 yr career as a marine/industrial painter.

I wonder what the true cure rate is for CIS? I've read numbers all over the place.

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