Knifedealer wrote: Thanks to all.
I will take your advice Sara Anne and keep my appointments, even if I cringe at the thought of more cystoscopies. The first and only one I had was painful, especially as the cystoscope passed through the prostate.
My wife has been very supportive throughout this process. She was diagnosed with breast cancer a few years back and is much more knowledgeable about cancer than I. Being aware of my ... well ... cystoscopophobia, she began researching non-invasive bladder tumor marker tests and asked my urologist about these when we met yesterday. He stated that while some of these tests may show promise, a cystoscopy in 3 months is the standard protocol for those with my diagnosis.
My best to all.
PS, during the cystoscopy, when the pain became overwhelming, the nurse instructed me to curl my toes. In hindsight, the technique worked as it redirected the focus of my attention away from the "flexible" tube traveling where no flexible tubes have ever gone before.
I also suffer from this "cystoscophobia"! I have been wondering why they don't do cystos like they do colonoscopies? A little propofol, off to dreamland, then right back. I have no problem going back for a colonoscopy, but the idea of going through a cysto again gives me off-the-charts levels of anxiety. Mine hurt...not discomfort, but pain, and I did indeed yell out as he went through my prostate. The toe-curling I did on my own, as well as being as tense as a two-by-four. I know that's when, because he told me, "OK, now you might feel something as I'm going to go through the prostate". Hey bub....I felt something the whole time....but thanks for letting me know it was about to get a lot worse! Couple that with the fact that I already suffer anxiety from any work done down there stemming from many childhood surgeries, and well, I just wish there was a better way. Like propofol! Does anyone know why they won't just make that an option?