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Greg, newly diagnosed Kidney Stone and Papillary Tissue

10 months 2 weeks ago #56556 by Regor
TURBT complete by 5pm last night. Went well, weekend of recoup now.

Tumor removed (cancerous) and "red patches" removed assumed by Dr. to be non-cancerous.

Thanks for the support, next status - pathology.

TURBT Jan 2019; Diag: CIS
Induction BCG (Mar 19) /Maint BCG (Aug 19)
TURBT Nov 2019; Diag: CIS
Repeat Induction BCG starts Dec 2019

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10 months 2 weeks ago - 10 months 2 weeks ago #56550 by Alan
I am pretty sure most papillary types are cancerous. The grade and stage...who knows. My URO was sure mine was low grade as many are but, he was surprised when the path report showed high grade. I have learned as with other health issues I have had over the years to simply wait. Speculation is counter productive other than I trust yours is low grade or, the outside chance it is not even cancer!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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10 months 2 weeks ago #56549 by Regor
Thanks Alan. What I was really trying to ask is -
Why does there seem to be a judgement from my Dr. that my papillary tumor "is" cancer, just not sure of stage and grade ...
but ...

All I've read online is that a Tumor is not automatically cancerous? Have I missed something?

Thanks
Greg

TURBT Jan 2019; Diag: CIS
Induction BCG (Mar 19) /Maint BCG (Aug 19)
TURBT Nov 2019; Diag: CIS
Repeat Induction BCG starts Dec 2019

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10 months 2 weeks ago #56548 by Alan
Hang in there. Waiting for the path is no fun but, you are/will be on your way beating this with a plan soon.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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10 months 2 weeks ago #56542 by Regor
Just got back from my TURBT Pre-Op with the Surgeon. All questions answered, but one answer caught me off-guard.

From everything I've read, the long wait is the post-TURBT pathology report to signify - is it cancer, what is the stage, and grade.

I specifically asked the Dr. "we won't know it's cancer till the pathology report?", and her response was - "It is Cancer just a matter of Stage and Grade". I had all my questions printed up and gave her a copy, and she marked comments on my paper. The below list of staging was printed on my questions paper. She jumped right over T0 and commented that "most likely" I will fall into Ta/Tis/T1, but yes, without the TURBT and pathology, they won't know exactly how deep and grade.

Staging
i. T0: No evidence of cancer
ii. Ta: A non-invasive papillary (finger-like) tumor
iii. Tis: A non-invasive flat carcinoma (carcinoma in situ)
iv. T1: Infiltration of the lamina propria

v. T2A: Infiltration of the inner muscle
vi. T2b: Infiltration of the deep muscle
vii. T3: Extending beyond the bladder wall
viii. T4a: Involving the prostate gland or seminal vesicles
ix. T4b: Involving the pelvic wall or abdominal wall

TURBT Jan 2019; Diag: CIS
Induction BCG (Mar 19) /Maint BCG (Aug 19)
TURBT Nov 2019; Diag: CIS
Repeat Induction BCG starts Dec 2019

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10 months 2 weeks ago #56533 by Regor
Pre-op Thursday, I have my list of questions ready for the Surgeon ;)
Surgery scheduled for Friday afternoon (1/4/19), estimated at 5-6 hours as out-patient.

TURBT Jan 2019; Diag: CIS
Induction BCG (Mar 19) /Maint BCG (Aug 19)
TURBT Nov 2019; Diag: CIS
Repeat Induction BCG starts Dec 2019

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