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Had my TURBT today.

5 years 5 months ago #56207 by JIMG4
Replied by JIMG4 on topic Had my TURBT today.
knifedealer

i'm sorry to hear you are going through this. my prayers and thoughts are with you.

I will tell you that post resection, definitely follow your doctor's words on resting and not lifting heavy objects etc. REST!!!

These instructions are very important and necessary to proper healing.

My pain was high in terms of urinary relief post surgery for two days then tapered off, other than that the pain was not bad at all. I had significant blood clots post surgery and continue with such due to location and size of my tumor. I met with my urologist yesterday, 3 weeks post TURBT .....and I still had scabs small clot and hematuria due to healing the day before (painless).

But again, rest rest rest!!!
Please let me know how you make it with everything post surgery.

thinking of you.

JIM4
10/25/18: TURBT
11/06/18: DX Ta - low grade non-invasive TCC
07/07/20: Recurrence. TURBT (07/30/20)
08/13/20 - 09/17/20 gemcitibine chemo intravesical therapy
12/14/22 - Cystoscopy Recurrence
01/19/23 - TURBT + Gemcitibine intravesical.
01/23/23 - DX non muscle invasive high grade

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5 years 5 months ago - 5 years 5 months ago #56203 by Alan
Replied by Alan on topic Had my TURBT today.
Knifedealer,

I won't say a TURB is almost a non event as there always minimal chances that complications can arise in ANY procedure. Just about everyone with bladder cancer has gone through at least one of these. Most of us are back to routine activity in 1-3 days. Everyone is different on pain threshold and of course how much they find inside poking around. I don't remember taking any hydrocodone save one dose as I went home. This procedure is even better than doing this laproscopically and recuperation is even faster. Most of us out of the day surgery in a few hours.

As you go through this journey keep posting. The pathology report will be the next hurdle as you really won't know much until then. Let's hope this is nothing and if it is bladder cancer it IS beatable and treatable. You will do fine.
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
The following user(s) said Thank You: Knifedealer

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5 years 5 months ago #56198 by Knifedealer
Replied by Knifedealer on topic Had my TURBT today.
Thank you for sharing your TURBT experience JIMG4. My TURBT is scheduled for tomorrow and I'm really unsure what to expect, especially as it relates to pain level/control and my ability to resume normal activities post-op.

I also fear the procedure itself. For example in your case, a tumor and a section of bladder were removed. I'm astonished (read frightened) to think that all of this tissue can be removed through the resectoscope. The only comforting thought is that if the procedure could be more safely performed through a small incision (laproscopically?) then it would probably be done that way.

Thanks again and may your recovery be swift.

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5 years 5 months ago #56053 by JIMG4
Replied by JIMG4 on topic Had my TURBT today.
doglover

glad to hear you had the resection completed!! Best of luck with results and healing!!!

Jim
10/25/18: TURBT
11/06/18: DX Ta - low grade non-invasive TCC
07/07/20: Recurrence. TURBT (07/30/20)
08/13/20 - 09/17/20 gemcitibine chemo intravesical therapy
12/14/22 - Cystoscopy Recurrence
01/19/23 - TURBT + Gemcitibine intravesical.
01/23/23 - DX non muscle invasive high grade

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5 years 5 months ago #56036 by doglover
Replied by doglover on topic Had my TURBT today.
Alan,
She did mention BCG, so perhaps she meant if it was muscle invasive and high grade it would be bladder removal not just if it was high grade. This was said before the procedure and I was nervous but not drugged yet. so I actually asked again after hearing the words bladder removal. My companion was not really familiar with diagnosis, so she said she didn't remember hearing anything else except that either.
I thought even with muscle invasive there were some options for chemo or radiation. I think there is a site here for reading the procedures for stages. She said there was a limit to how much she could really see with the naked eye and that pathology would determine the result.
DX 10-19 First TURB Low grade, non invasive papillary urothelial carcinoma pTa. Recurrence 11-19 Second TURB DX Papillary Urothelial Neoplasm of Low Malignant Potential (PUNLMP)
Second recurrence discovered June 8, 2020 six months later.

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5 years 5 months ago - 5 years 5 months ago #56030 by Alan
Replied by Alan on topic Had my TURBT today.
Yes, drink lots of water. Pathology is anywhere from 3-10 days (business days). One item that is probably just a communication error. You wrote the doc said removal if high grade. That is usually reserved for muscle invasive tumors. High grade that does not invade is usually done with BCG (immunotherapy). Also, if it is read that way a second TURB is usually done to be sure and safe.
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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