Anne, sorry you have to be here. I was diagnosed with stage 2 at 48 I am now 62. My bladder was removed, I have a diversion and it has changed my life very little. Once bladder cancer has become invasive bladder removal has shown to offer the highest survival rate possible. The trouble with bladder cancer is that it has a high rate of recurrence and by being invasive your Mom’s cancer has already shown itself to be aggressive. There is a bladder saving protocol but it is a very intense treatment protocol and if it fails you have to have what they referr to as a salvage radical cystectomy. Also the protocol should be done at a cancer center of excellence that has a history of using the protocol, I was in treatment from Oct. to May. I went through it myself and after 20 trips to chemotherapy and 40 to radiation the cancer came back within months. The radiation can do a lot of damage to surrounding tissue and complicate surgery. Having been weakened by the intense chemotherapy and radiation it greatly prolonged my recovery. Looking back I realize that I was more intent on saving my bladder than saving my life.
What ever your Mom does know we are here for both of you.
Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society