I am new to the form , actually I’ve never been on a form before....I was diagnosised with a large high grade malignant turner 2017. Removed the tumer and then began BCG treatments. February’18, 3 small high grade removed and continued with BCG. June 2018 removed 2 more high grade malignant tumors, and placed mitomycin (chemo)inside the bladder for two hours. I left the hospital without a catheter, even though the last two surgeries I left with a catheter, 10 days after surgery, I had extreme pain on the right side of my abdomen. After a CAT scan they said I had a whole in my bladder. I left with a catheter and the within the last couple of week the pain has been tough to manage. I guess I’m wondering how can I find other who may have had mitomycin leak to other parts of the body or what they have experienced as far as side effects go.
I have lost over half of my hair, low fatigue, nausea,constipation/diarea...all yucky stuff. All from one treatment. My heart goes out to all of you that are living through this. Sending healing energy to all.