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Any recommendations of Medical Oncologists in Urology at UCLA

5 months 4 days ago #55589 by DianaPB
Hi Cynthia,

Thanks so much about getting treatment with a Center.

Do you know PET CT is necessary before the treatment to establish a baseline? (Less is better, right, so why just do one PEt CT after treatment?)

Thanks,

Diana

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5 months 1 week ago #55560 by Cynthia
All this is very new to you and all of us feel like we are fumbling around in the dark at first. Maybe this will simplify all of this. Most major centers of excellence such as you mentioned UCLA have treatment teams. The idea is that they hire the best of the best and they all work together so the patient reaps the benefit of many and just not one. When you make an appointment they will tell you where to have test and pathology reports sent, they will assemble a team that has the expertise your brother needs. The team will then review your brothers reports and meet with your brother at his appointment. It will take a little while to set up so the sooner you make an appointment the sooner decisions and treatment can begin.

I hope this helps and please keep us updated.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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5 months 1 week ago - 5 months 1 week ago #55555 by Jack R
Diana,

You can learn about the NCI Designated Cancer Centers at the following link

https://www.cancer.gov/research/nci-role/cancer-centers

I looked up your area. Los Angeles, and there are FOUR centers in your area. Each is an independent facility that has been recognized by and receives government support for cancer patient services and research. Nationwide, these are the centers that have the funding and expertise to provide the widest range of cancer related services.

You would call EACH of the four centers, and inquire about about an appointment for the specifics of your situation. You would want to ask which of the four centers might be best for your needs, and ask about the availability of an appointment - how soon can you be seen. Just like scheduling any other doctor's appointment.

The Four centers in the Los Angeles area, plus one in San Diego, with website links, are listed below.
Visit the websites, review their programs, find phone numbers.
Call the information lines. Describe your need, find help for your situation and set an appointment.
One or more of these centers will be able to assist you.

The Jonsson Cancer Center at UCLA
https://cancer.ucla.edu/

The Norris Comprehensive Cancer Center at USC
http://uscnorriscancer.usc.edu/
NOTE: The Norris Center is part of the USC Keck School of Medicine at USC.

City of Hope Cancer Center
https://www.cityofhope.org/homepage

Chao Family Comprehensive Cancer Center at UC Irvine
http://www.cancer.uci.edu/

Additionally, in San Diego,

The UC San Diego Moores Cancer Center
https://health.ucsd.edu/specialties/cancer/Pages/default.aspx

Best,
Jack

What's with this Bleeding ? 6/2015
DX: HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
T0 CIS comes back.
BC clear as of 5/17 !
RCC found in my one (only) kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo , round 3
Begin year 4 with cis T0

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5 months 1 week ago #55554 by DianaPB
Hi Jack,

You mean to go a NCI facility and get diagnosed and then the NCi will select a center for the patient.

As we are in LA, so we can ask NCI to recommed UCLA or other center, right?

Thanks and I learned a lot in the forum.

Diana

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5 months 1 week ago #55553 by Jack R
From my experience at a NCI Comprehensive Cancer Center.

You just get an appointment, The doctors have been vetted for you. Your situation will be evaluated and you will be referred to the appropriate care teams. That is TEAMS with an S.

The name of the initial physician you meet is unimportant. It will be whoever is on new patient duty that day.

Just make sure that the intake people understand the medical condition of the patient when you call to schedule an initial appointment.

My experience at a NCI-CCC. (not the UCLA Jonsson Center, I chose closer to my home)

If your doctor has a buddy there and can grease the skids, so much the better.

Best,
Jack

What's with this Bleeding ? 6/2015
DX: HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
T0 CIS comes back.
BC clear as of 5/17 !
RCC found in my one (only) kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo , round 3
Begin year 4 with cis T0

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5 months 1 week ago #55552 by DianaPB
Hello,

Does anyone know Medical Oncologists with speciality in Urology at UCLA Med Center?

My brother may have TCC with bone mets.

Appreciated very much!

Diana

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